[Improving the management of children with type 1 diabetes and their families: What role for the advanced practice nurse, coordinator of complex care pathways? A qualitative, exploratory study using semi-directed interviews].

BACKGROUND

Type 1 diabetes in children in Switzerland is becoming increasingly prevalent. The coordination of care seems to be a determining element and is essential for effective and efficient care.

OBJECTIVE

Identify the difficulties and the levers of coordination faced by healthcare workers and families during the discovery of type 1 diabetes in children aged from birth to fifteen.

METHOD

Qualitative analysis using semi-directed interviews.

RESULTS

Three families and five healthcare workers participated in the study. Confirmation of the diagnosis was received badly and was a shock for the families. Nurses specializing in pediatric diabetes are recognized for being experts in diabetes care and education. Non-specialist nurses consider diabetes care to be stressful and complex. Collaboration between units is described as compartmentalized. ICT tools are not shared between units. Psychological support is considered to be unsatisfactory by the families.

DISCUSSION

Interdisciplinary nurses need to work together and with a structured coordination of care.