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[改善1型糖尿病患儿及其家庭的管理:高级实践护士(复杂护理路径协调员)能发挥什么作用?一项使用半定向访谈的定性探索性研究]

[Improving the management of children with type 1 diabetes and their families: What role for the advanced practice nurse, coordinator of complex care pathways? A qualitative, exploratory study using semi-directed interviews].

作者信息

Tellier Hélène, Colson Sébastien, Gentile Stéphanie

出版信息

Rech Soins Infirm. 2019 Mar(136):80-89. doi: 10.3917/rsi.136.0080.


DOI:10.3917/rsi.136.0080
PMID:31210504
Abstract

BACKGROUND: Type 1 diabetes in children in Switzerland is becoming increasingly prevalent. The coordination of care seems to be a determining element and is essential for effective and efficient care. OBJECTIVE: Identify the difficulties and the levers of coordination faced by healthcare workers and families during the discovery of type 1 diabetes in children aged from birth to fifteen. METHOD: Qualitative analysis using semi-directed interviews. RESULTS: Three families and five healthcare workers participated in the study. Confirmation of the diagnosis was received badly and was a shock for the families. Nurses specializing in pediatric diabetes are recognized for being experts in diabetes care and education. Non-specialist nurses consider diabetes care to be stressful and complex. Collaboration between units is described as compartmentalized. ICT tools are not shared between units. Psychological support is considered to be unsatisfactory by the families. DISCUSSION: Interdisciplinary nurses need to work together and with a structured coordination of care.

摘要

背景:瑞士儿童1型糖尿病的发病率日益上升。护理协调似乎是一个决定性因素,对于有效且高效的护理至关重要。 目的:确定医护人员和家庭在发现1至15岁儿童1型糖尿病过程中面临的协调困难及推动因素。 方法:采用半定向访谈进行定性分析。 结果:三个家庭和五名医护人员参与了该研究。诊断结果的确认让家庭难以接受,对他们来说是一个打击。专门从事儿童糖尿病护理的护士被公认为糖尿病护理和教育方面的专家。非专科护士认为糖尿病护理压力大且复杂。各科室之间的协作被描述为相互分隔。信息通信技术工具在各科室之间未共享。家庭认为心理支持并不令人满意。 讨论:跨学科护士需要共同努力,并进行结构化的护理协调。

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引用本文的文献

[1]
Effectiveness of Advanced Practice Nursing Interventions on Diabetic Patients: A Systematic Review.

Healthcare (Basel). 2025-3-26

[2]
Investigation of the therapeutic education effect on glycemic control and quality of life of children and adolescents with type-1 diabetes mellitus: A non-randomized controlled study.

J Educ Health Promot. 2024-7-11

[3]
Effects of therapeutic patient education program on glycemic control and quality of life among children and adolescents with type 1 diabetes mellitus in Fez city, Morocco.

Perspect Clin Res. 2024

[4]
Educational needs of type 1 diabetes mellitus T1DM children and adolescents in Morocco: A qualitative study.

J Educ Health Promot. 2023-4-28

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