在土耳其非行走型脑瘫儿童样本中对照顾者优先事项及残疾儿童生活健康指数（CPCHILD）进行验证。
Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy.
作者信息
Şimşek Tülay Tarsuslu, Sertel Meral, Yümin Eylem Tütün, Aras Bahar, Narayanan Unni G
机构信息
School of Physical Therapy and Rehabilitation, Dokuz Eylül University, İzmir, Turkey.
Department of Physiotherapy and Rehabilitation, Kırıkkale University Faculty of Health Science, Kırıkkale, Turkey.
出版信息
Turk Pediatri Ars. 2019 Mar 1;54(1):13-27. doi: 10.14744/TurkPediatriArs.2019.57778. eCollection 2019.
AIM
The aim of this study was to translate and transculturally adapt the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire into the Turkish language and test the reliability and validity.
MATERIAL AND METHODS
Eighty-two children with cerebral palsy and their parents were included in the study. The majority of children had spastic cerebral palsy. According to the Gross Motor Function Classification System, 26 children were level III, 30 children were level IV, and 26 children were level V. International accepted guidelines were used in the transcultural adaptation and validation process. Reliability was assessed through statistical analysis of the test results for test-retest and internal consistency. To assess construct validity, Caregiver Priorities and Child Health Index of Life with Disabilities was compared with the Child Health Questionnaire Parent Form. Concurrent validity was assessed by examining how Caregiver Priorities and Child Health Index of Life with Disabilities scores changed according to Gross Motor Function Classification System levels.
RESULTS
The mean total score of Caregiver Priorities and Child Health Index of Life with Disabilities was 58.34±26.39. The intraclass correlation coefficient for the total questionnaire score was 0.75, ranging from 0.43 to 0.89 for six domains. Cronbach's alpha was above 0.80 in all domains of Caregiver Priorities and Child Health Index of Life with Disabilities, except the health domain. The construct validity was good because there was a positive correlation between total Child Health Questionnaire Parent Form and Caregiver Priorities and Child Health Index of Life with Disabilities scores (r=0.58, p<0.01) according to the Pearson correlation analysis. Caregiver Priorities and Child Health Index of Life with Disabilities scores were found to be different between Gross Motor Function Classification System levels (p<0.05).
CONCLUSION
This study showed that the Caregiver Priorities and Child Health Index of Life with Disabilities appears to be easy to administer, seems to have significant validity and reliability, and may be useful in the evaluation of health-related quality of life of children with cerebral palsy.
目的
本研究旨在将《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》翻译成土耳其语并进行跨文化调适，同时检验其信效度。
材料与方法
82名脑瘫儿童及其父母纳入本研究。大多数儿童为痉挛型脑瘫。根据粗大运动功能分类系统，26名儿童为Ⅲ级，30名儿童为Ⅳ级，26名儿童为Ⅴ级。跨文化调适和效度验证过程采用国际公认的指南。通过对重测和内部一致性测试结果进行统计分析来评估信度。为评估结构效度，将《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》与《儿童健康问卷家长版》进行比较。通过检查《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》得分如何根据粗大运动功能分类系统水平变化来评估同时效度。
结果
《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》的平均总分是58.34±26.39。问卷总分的组内相关系数为0.75，六个领域的组内相关系数范围为0.43至0.89。除健康领域外，《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》所有领域的Cronbach's α均高于0.80。根据Pearson相关分析，由于《儿童健康问卷家长版》总分与《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》得分之间存在正相关（r = 0.58，p<0.01），所以结构效度良好。发现《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》得分在粗大运动功能分类系统水平之间存在差异（p<0.05）。
结论
本研究表明，《残疾儿童生活中照顾者优先事项及儿童健康指数问卷》似乎易于实施，具有显著的效度和信度，可能有助于评估脑瘫儿童与健康相关的生活质量。
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