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与 HIV 共存的母亲的情感体验和情感康复的追求:秘鲁利马的一项定性研究。

Emotional Experiences of Mothers Living With HIV and the Quest for Emotional Recovery: A Qualitative Study in Lima, Peru.

机构信息

Carmen Contreras, BA, is Director of Intervention Projects, Socios En Salud, Partners In Health, Lima, Peru. Nancy Rumaldo, BA, is a Project Coordinator, Socios En Salud, Partners In Health, Lima, Peru. Michael Masao Lindeborg, BA, is an MD candidate, Harvard Medical School, Boston, Massachusetts, USA. Milagros Mendoza, BA, is a Project Manager, Socios En Salud, Partners In Health, Lima, Peru. David Roy Chen, BA, is an MD candidate, University of Washington School of Medicine, Seattle, Washington, USA. Olga Saldaña, RN, is a Field Coordinator, Socios En Salud, Partners In Health, Lima, Peru. Milagros Wong, RN, is a Project Manager, Socios En Salud, Partners In Health, Lima, Peru. Maribel Muñoz, RN, is a Project Manager, Socios En Salud Partners In Health, Lima, Peru. Elizabeth Schrier, BA, is a Research Assistant, Dana-Farber Cancer Institute, Boston, Massachusetts, USA. Leonid Lecca, MD, MPH, is a Lecturer on Global Health and Social Medicine, Department of Global Health and Social Medicine, Harvard Medical School, Boston, Massachusetts, USA, and Executive Director of Socios En Salud, Partners In Health, Lima, Peru. Arachu Castro, PhD, MPH, is the Samuel Z. Stone Endowed Chair of Public Health in Latin America, Department of Global Community Health and Behavioral Sciences, and Director of the Collaborative Group for Health Equity in Latin America (CHELA), Tulane School of Public Health and Tropical Medicine, Tulane University, New Orleans, Louisiana, USA. Sonya Sunhi Shin, MD, MPH, is an Associate Physician of Infectious Disease, Division of Global Health Equity at Brigham and Women's Hospital, Boston, Massachusetts, USA. Adrianne Katrina Nelson, MPH, Msc, is a Research Manager, Division of Global Health Equity, Brigham and Women's Hospital, Boston, Massachusetts, USA.

出版信息

J Assoc Nurses AIDS Care. 2019 Jul-Aug;30(4):440-450. doi: 10.1097/JNC.0000000000000051.

Abstract

Little evidence exists about the emotional experiences of mothers with HIV, and a better understanding is essential to support their emotional health and treatment adherence. We describe the emotional experiences of eight mothers who initiated antiretroviral therapy during pregnancy or within a few years of childbirth in Lima, Peru. An interpretive phenomenological approach was used, and the following themes emerged: (a) emotions involved in diagnosis and disclosure, (b) the meaning of motherhood with HIV, (c) the mothers' roles in seeking and maintaining relationships with partners and families, and (d) mechanisms for resilience and emotional recovery. Participants experienced sadness and denial after diagnosis, which gave way to emotional recovery. Participant abilities to find refuge in caring for children and coordinating support from loved ones proved to be essential. Participants recognized that intense emotions motivated them to seek creative solutions and cited personal growth as an important outcome.

摘要

关于感染 HIV 的母亲的情感体验,目前几乎没有相关证据,为了支持她们的情感健康和治疗依从性,我们需要更好地理解这一点。本研究描述了在秘鲁利马,8 位在怀孕期间或产后几年内开始接受抗逆转录病毒治疗的母亲的情感体验。采用解释现象学方法,得出以下主题:(a)诊断和披露所涉及的情绪;(b)HIV 母亲身份的意义;(c)母亲在寻求和维持与伴侣和家庭关系中的角色;(d)韧性和情绪恢复的机制。参与者在诊断后经历了悲伤和否认,随后情绪恢复。参与者在照顾孩子和协调亲人支持方面的能力被证明是至关重要的。参与者认识到强烈的情绪促使他们寻求创造性的解决方案,并指出个人成长是一个重要的结果。

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