Department of Health Information Management, University of Pittsburgh, Pittsburgh, PA, United States.
JMIR Mhealth Uhealth. 2019 Jul 5;7(7):e13194. doi: 10.2196/13194.
A personal health record (PHR) system encourages patients to engage with their own health care by giving them the ability to manage and keep track of their own health data. Of the numerous PHR systems available in the market, many are Web-based patient portals and a few are mobile apps. They have mainly been created by hospitals and electronic health record (EHR) vendors. One major limitation of these hospital-created PHR systems is that patients can only view specific health data extracted from their EHR. Patients do not have the freedom to add important personal health data they collect in their daily lives into their PHR. Therefore, there is an information gap between clinical visits.
The aim of this study was to develop and evaluate a new mobile PHR app that can be easily used to manage various types of personal health data to fill the information gap.
A user-centered approach was used to guide the development and evaluation of the new mobile PHR app. There were three steps in this study: needs assessment, app design and development, and conducting a usability study. First, a large-scale questionnaire study was conducted with the general population to gain an understanding of their needs and expectations with regard to a mobile PHR app. A mobile PHR app for personal medical data tracking and management was then created based on the results of the questionnaire study. End users were actively involved in all stages of the app development. Finally, a usability study was performed with participants to evaluate the usability of the mobile PHR app, which involved asking participants to finish a set of tasks and to respond to a usability questionnaire.
In the questionnaire study for needs assessment, there were 609 participants in total. The answers from these participants revealed that they wanted to manage various types of personal health data in a mobile PHR app. Participants also reported some features they desired to have in the app. On the basis of the needs assessment findings, a new mobile PHR app (PittPHR) was created with 6 major modules: health records, history, trackers, contacts, appointments, and resources. This app allows users to customize the trackers according to their needs. In the usability study, there were 15 participants. The usability study participants expressed satisfaction with the app and provided comments and suggestions for further development.
This new mobile PHR app provides options for users to manage a wide range of personal health data conveniently in one place. The app fills the information gap between clinical visits. The study results indicated that this new mobile PHR app meets the need of users and that users welcome this app.
个人健康记录 (PHR) 系统通过让患者能够管理和跟踪自己的健康数据,鼓励他们参与自己的医疗保健。在市场上众多可用的 PHR 系统中,许多是基于 Web 的患者门户,还有少数是移动应用程序。它们主要由医院和电子健康记录 (EHR) 供应商创建。这些由医院创建的 PHR 系统的一个主要限制是,患者只能查看从其 EHR 中提取的特定健康数据。患者无法将他们在日常生活中收集的重要个人健康数据自由添加到他们的 PHR 中。因此,在临床就诊之间存在信息差距。
本研究旨在开发和评估一款新的移动 PHR 应用程序,该应用程序易于用于管理各种类型的个人健康数据,以填补信息空白。
采用以用户为中心的方法指导新的移动 PHR 应用程序的开发和评估。该研究有三个步骤:需求评估、应用程序设计和开发以及进行可用性研究。首先,对一般人群进行了大规模问卷调查研究,以了解他们对移动 PHR 应用程序的需求和期望。然后根据问卷调查研究的结果创建了用于个人医疗数据跟踪和管理的移动 PHR 应用程序。最终用户积极参与应用程序开发的各个阶段。最后,通过参与者进行了可用性研究,以评估移动 PHR 应用程序的可用性,其中包括要求参与者完成一组任务并回答可用性问卷。
在需求评估的问卷调查研究中,共有 609 名参与者。这些参与者的回答表明,他们希望在移动 PHR 应用程序中管理各种类型的个人健康数据。参与者还报告了他们希望在应用程序中具有的一些功能。在此基础上,根据需求评估结果,创建了一个具有 6 个主要模块的新移动 PHR 应用程序(PittPHR):健康记录、历史记录、跟踪器、联系人、预约和资源。该应用程序允许用户根据需要自定义跟踪器。在可用性研究中,有 15 名参与者。可用性研究参与者对该应用程序表示满意,并提供了进一步开发的意见和建议。
这个新的移动 PHR 应用程序为用户提供了在一个地方方便地管理广泛的个人健康数据的选项。该应用程序填补了临床就诊之间的信息空白。研究结果表明,这款新的移动 PHR 应用程序满足了用户的需求,用户欢迎这款应用程序。