Ayalew Mohammed, Workicho Abdulhalik, Tesfaye Elias, Hailesilasie Hailemariam, Abera Mubarek
1Department of Psychiatry Nursing, School of Nursing, College of Medicine and Health Sciences, Hawassa University, Hawassa, Ethiopia.
2Department of Epidemiology, Institute of Health, Jimma University, Jimma, Ethiopia.
Ann Gen Psychiatry. 2019 Jun 24;18:10. doi: 10.1186/s12991-019-0233-7. eCollection 2019.
Burden of caregivers of people with mental illness (PWMI) is considered to be a negative impact of the care provided by the family to the patient. However, little is known about the extent of the burden among caregivers of PWMI in Ethiopia. The aim of this study, therefore, is to assess the magnitude and associated factors of burden among caregivers of PWMI at Jimma University Medical Center, 2017.
Institution-based cross-sectional study design was employed among 406 conveniently selected caregivers of PWMI and interviewed using a structured questionnaire. Family burden interview schedule (FBIS) was used to assess burden of caregivers. Bivariate and multivariable linear regression analyses were performed to determine the predictors of burden among caregivers.
Nearly two-thirds [264 (65.0%)] of the participants were male with a mean age of 38.45 ± 12.03 years. The mean score for burden among caregivers on family burden interview schedule was 23.00 ± 10.71. Age of the caregivers ( = 0.18, < 0.001), being female caregiver ( = 2.68, < 0.01), duration of contact hours with the patient per day ( = 0.74, < 0.001), perceived stigma by the caregiver ( = 0.47, < 0.001), and providing care for patients who had history of substance use in life ( = 1.52, < 0.05) were positive predictors of higher burden among caregivers. Whereas, caregivers' income ( = 7.25, < 0.001), caregivers who had no formal education ( = 4.65, < 0.01), and caregivers' social support ( = 0.78, < 0.001) were negatively associated with higher burden among caregiver.
Caregivers of people with mental illness experience enormous burden during providing care for their relatives with mental illness. Therefore, creating community awareness and targeted interventions in the area of treatment access, stigma, financial, and other social support for people with mental illness and their caregivers would help out to reduce these burdens.
精神疾病患者(PWMI)照料者的负担被认为是家庭为患者提供照料所产生的负面影响。然而,埃塞俄比亚精神疾病患者照料者负担的程度鲜为人知。因此,本研究的目的是评估2017年吉马大学医学中心精神疾病患者照料者负担的程度及相关因素。
采用基于机构的横断面研究设计,对406名方便选取的精神疾病患者照料者进行研究,并使用结构化问卷进行访谈。家庭负担访谈量表(FBIS)用于评估照料者的负担。进行双变量和多变量线性回归分析以确定照料者负担的预测因素。
近三分之二[264名(65.0%)]的参与者为男性,平均年龄为38.45±12.03岁。照料者在家庭负担访谈量表上的平均负担得分为23.00±10.71。照料者的年龄(β = 0.18,P < 0.001)、女性照料者(β = 2.68,P < 0.01)、每天与患者接触的时长(β = 0.74,P < 0.001)、照料者感知到的耻辱感(β = 0.47,P < 0.001)以及为有物质使用史的患者提供照料(β = 1.52,P < 0.05)是照料者负担加重的正向预测因素。而照料者的收入(β = 7.25,P < 0.001)、未接受正规教育的照料者(β = 4.65,P < 0.01)以及照料者的社会支持(β = 0.78,P < 0.001)与照料者较高的负担呈负相关。
精神疾病患者的照料者在为患有精神疾病的亲属提供照料期间承受着巨大负担。因此,提高社区意识并在治疗可及性、耻辱感、经济及其他社会支持等方面针对精神疾病患者及其照料者进行有针对性的干预,将有助于减轻这些负担。