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苏丹城市地区癫痫患者的生活质量及癫痫治疗卫生服务的不平等情况。

The quality of life and inequalities in health services for epilepsy treatment among patience in the urban cities of Sudan.

作者信息

Bashir Muwada Bashir Awad, Cumber Samuel Nambile

机构信息

Section for Epidemiology and Social Medicine, Department of Public Health, Institute of Medicine (EPSO), The Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden.

Discipline of Medicine and Surgery, Faculty of Medicine University of Khartoum, Sudan.

出版信息

Pan Afr Med J. 2019 May 7;33:10. doi: 10.11604/pamj.2019.33.10.15440. eCollection 2019.

Abstract

Epilepsy in Sudan accounts for 1.6 annual mortality rates and 238.7 disability adjusted life years per 100 000. These figures are higher among females; children and young adults. It is associated with notable stigma and social burdens. Patients of epilepsy are subjected to various forms of social discrimination that affect their quality of life. They are isolated, neglected and deprived of their education and employments rights and not able to achieve normal social and family life. Aiming at highlighting social implications of epilepsy among Sudanese patients, this study found that social encumbrances due to epilepsy in Sudan are more prevalent among highly vulnerable groups like women, children and poor populations living in remote areas. Lack of trained medical personnel in neurology and the medical equipment's required for proper diagnosis and treatment of epilepsy in Sudan are key reasons aggravating social and health burden of epilepsy both among patients and their caregivers.

摘要

苏丹的癫痫症导致的年死亡率为1.6%,每10万人中有238.7个伤残调整生命年。这些数字在女性、儿童和年轻人中更高。它还伴随着显著的耻辱感和社会负担。癫痫患者遭受各种形式的社会歧视,这影响了他们的生活质量。他们被孤立、忽视,被剥夺了受教育权和就业权,无法过上正常的社会和家庭生活。为了突出苏丹患者中癫痫症的社会影响,本研究发现,在苏丹,癫痫症造成的社会负担在妇女、儿童和生活在偏远地区的贫困人口等高弱势群体中更为普遍。苏丹缺乏训练有素的神经科医务人员以及癫痫症正确诊断和治疗所需的医疗设备,是加重患者及其护理人员癫痫症社会和健康负担的关键原因。

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