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言语病理学家对有复杂沟通需求的儿童接受、拒绝或放弃 AAC 系统的看法。

Speech pathologist perspectives on the acceptance versus rejection or abandonment of AAC systems for children with complex communication needs.

机构信息

a School of Health and Rehabilitation Sciences, The University of Queensland , Brisbane , Australia.

出版信息

Augment Altern Commun. 2019 Sep;35(3):193-204. doi: 10.1080/07434618.2019.1609577. Epub 2019 Jul 15.

Abstract

Despite the benefits of augmentative and alternative communication (AAC) systems for children with complex communication needs, these systems are not consistently accepted by parents. This study aimed to explore factors that contribute to the acceptance, rejection, or abandonment of AAC systems. Semi-structured interviews were conducted with 16 speech-language pathologists (SLPs) who had introduced at least one AAC system that was rejected or abandoned by the parent of a young child, as well as one that had been accepted. Thematic analysis revealed six themes that describe influences on parent acceptance of AAC systems: (a) The Way Parents View their Child, (b) Parents' Views on AAC Intervention, (c) Support Networks Around Parents, (d) The Capacity of and Demands on Parents, (e) Services Provided by SLPs, and (f) Specific Features of AAC Systems. Themes were largely consistent with the existing literature; however, SLPs raised the novel concept of parent grief and loss as a potential contributor to AAC abandonment. To increase AAC acceptance, SLPs should consider not only the child with complex communication needs, but also the child's parents, the AAC systems available, and their own clinical limitations.

摘要

尽管辅助和替代性沟通 (AAC) 系统对有复杂沟通需求的儿童有益,但这些系统并未得到家长的一致认可。本研究旨在探讨影响 AAC 系统接受、拒绝或放弃的因素。研究人员对 16 名言语治疗师进行了半结构化访谈,这些治疗师至少为一名幼儿的家长介绍过一种被拒绝或放弃的 AAC 系统,以及一种被接受的 AAC 系统。主题分析揭示了影响家长接受 AAC 系统的六个主题:(a) 父母对孩子的看法,(b) 父母对 AAC 干预的看法,(c) 父母周围的支持网络,(d) 父母的能力和需求,(e) 言语治疗师提供的服务,以及 (f) AAC 系统的特定功能。这些主题与现有文献基本一致;然而,言语治疗师提出了父母悲伤和失落作为 AAC 放弃的潜在因素这一新颖概念。为了提高 AAC 的接受度,言语治疗师不仅应考虑有复杂沟通需求的儿童,还应考虑儿童的父母、可用的 AAC 系统以及他们自身的临床局限性。

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