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我们是否理解干预措施?复杂干预研究可以为我们评估临床伦理支持服务(CESS)提供哪些启示?

Do we understand the intervention? What complex intervention research can teach us for the evaluation of clinical ethics support services (CESS).

机构信息

Institute for History and Ethics of Medicine, Martin Luther University Halle-Wittenberg, Magdeburger Str. 8, 06112, Halle, Germany.

Institute for educational and health-care research in the health sector (InBVG), Bielefeld University of Applied Sciences, Interaktion 1, 33619, Bielefeld, Germany.

出版信息

BMC Med Ethics. 2019 Jul 15;20(1):48. doi: 10.1186/s12910-019-0381-y.

Abstract

BACKGROUND

Evaluating clinical ethics support services (CESS) has been hailed as important research task. At the same time, there is considerable debate about how to evaluate CESS appropriately. The criticism, which has been aired, refers to normative as well as empirical aspects of evaluating CESS.

MAIN BODY

In this paper, we argue that a first necessary step for progress is to better understand the intervention(s) in CESS. Tools of complex intervention research methodology may provide relevant means in this respect. In a first step, we introduce principles of "complex intervention research" and show how CESS fulfil the criteria of "complex interventions". In a second step, we develop a generic "conceptual framework" for "ethics consultation on request" as standard for many forms of ethics consultation in clinical ethics practice. We apply this conceptual framework to the model of "bioethics mediation" to make explicit the specific structural and procedural elements of this form of ethics consultation on request. In a final step we conduct a comparative analysis of two different types of CESS, which have been subject to evaluation research: "proactive ethics consultation" and "moral case deliberation" and discuss implications for evaluating both types of CESS.

CONCLUSION

To make explicit different premises of implemented CESS interventions by means of conceptual frameworks can inform the search for sound empirical evaluation of CESS. In addition, such work provides a starting point for further reflection about what it means to offer "good" CESS.

摘要

背景

评估临床伦理支持服务(CESS)一直被誉为一项重要的研究任务。与此同时,如何恰当地评估 CESS 也存在相当大的争议。这些批评涉及到评估 CESS 的规范性和实证性方面。

正文

本文认为,取得进展的第一步是更好地理解 CESS 中的干预措施。复杂干预研究方法的工具可能为此提供相关手段。在第一步中,我们介绍了“复杂干预研究”的原则,并展示了 CESS 如何满足“复杂干预”的标准。在第二步中,我们为“按需伦理咨询”制定了一个通用的“概念框架”,作为临床伦理实践中许多形式的伦理咨询的标准。我们将这个概念框架应用于“生物伦理调解”模型,以明确这种按需伦理咨询形式的具体结构和程序要素。在最后一步,我们对两种已经接受过评估研究的不同类型的 CESS(主动伦理咨询和道德案例审议)进行了比较分析,并讨论了这两种类型的 CESS 的评估意义。

结论

通过概念框架明确实施的 CESS 干预措施的不同前提,可以为 CESS 的合理实证评估提供信息。此外,此类工作为进一步思考提供了一个起点,即提供“良好”的 CESS 意味着什么。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1876/6633613/2f704956d433/12910_2019_381_Fig1_HTML.jpg

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