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用于电子健康研究与开发以通过远程监测技术支持心血管疾病自我管理的框架、模型和理论:一项元民族志综述方案

Frameworks, Models, and Theories Used in Electronic Health Research and Development to Support Self-Management of Cardiovascular Diseases Through Remote Monitoring Technologies: Protocol for a Metaethnography Review.

作者信息

Cruz-Martínez Roberto Rafael, Noort Peter Daniel, Asbjørnsen Rikke Aune, van Niekerk Johan Magnus, Wentzel Jobke, Sanderman Robbert, van Gemert-Pijnen Lisette

机构信息

Department of Psychology, Health and Technology, Faculty of Behavioural, Management and Social sciences, Technical Medical Centre, University of Twente, Enschede, Netherlands.

Embedded Information Services, Library, ICT Services & Archive, University of Twente, Enschede, Netherlands.

出版信息

JMIR Res Protoc. 2019 Jul 16;8(7):e13334. doi: 10.2196/13334.

Abstract

BACKGROUND

Electronic health (eHealth) is a multidisciplinary and rapidly evolving field, and thus requires research focused on knowledge accumulation, curation, and translation. Cardiovascular diseases constitute a global health care crisis in which eHealth can provide novel solutions to improve the efficiency and reach of self-management support for patients where they most need it: their homes and communities. A holistic understanding of eHealth projects focused on such case is required to bridge the multidisciplinary gap formed by the wide range of aims and approaches taken by the various disciplines involved.

OBJECTIVE

The primary objective of this review is to facilitate a holistic interpretation of eHealth projects aimed at providing self-management support of cardiovascular diseases in the natural setting of patients, thus priming the use of remote monitoring technologies. The review aims to synthesize the operationalization of frameworks, models, and theories applied to the research and development process of eHealth.

METHODS

We will use Noblit and Hare's metaethnography approach to review and synthesize researchers' and practitioners' reports on how they applied frameworks, models, and theories in their projects. We will systematically search the literature in 7 databases: Scopus, Web of Science, EMBASE, CINAHL, PsycINFO, ACM Digital Library, and the Cochrane Library. We will thoroughly read and code selected studies to extract both raw and contextual data for the synthesis. The relation of the studies will be determined according to the elements of the frameworks, models, or theories the studies applied. We will translate these elements between each other and intend to synthesize holistic principles for eHealth development for the case at hand.

RESULTS

The search strategy has been completed, data extraction is almost finalized, and the first synthesis approaches are underway. The search yielded 1224 citations and, after we applied the selection criteria, 17 articles remained. We expect to submit the final results for publication in 2019.

CONCLUSIONS

This review is important because it aims to create a holistic understanding of a multidisciplinary topic at the crossroads of eHealth, cardiovascular diseases, and self-management. The value of metaethnography in contrast to other systematic review methods is that its synthesis approach seeks to generate a new understanding of a topic, while preserving the social and theoretical contexts in which findings emerge. Our results will show how useful this method can be in bridging the multidisciplinary gap of eHealth research and development, to inform and advance the importance of holistic approaches, while showcasing this approach for the case of self-management in cardiovascular diseases.

TRIAL REGISTRATION

PROSPERO CRD42018104397; https://www.crd.york.ac.uk/PROSPERO/display_record.php? RecordID=104397 (Archived by WebCite at http://www.webcitation.org/75H1kP1Mm).

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/13334.

摘要

背景

电子健康(eHealth)是一个多学科且快速发展的领域,因此需要专注于知识积累、管理和转化的研究。心血管疾病构成了一场全球医疗保健危机,在这场危机中,电子健康能够提供新颖的解决方案,以提高自我管理支持的效率,并将其延伸至患者最需要的地方:他们的家庭和社区。需要对专注于此类情况的电子健康项目有一个全面的了解,以弥合各相关学科因广泛的目标和方法所形成的多学科差距。

目的

本综述的主要目的是促进对旨在在患者自然环境中提供心血管疾病自我管理支持的电子健康项目进行全面解读,从而推动远程监测技术的应用。该综述旨在综合应用于电子健康研发过程的框架、模型和理论的实施情况。

方法

我们将使用诺布利特和黑尔的元民族志方法来回顾和综合研究人员及从业者关于他们如何在项目中应用框架、模型和理论的报告。我们将系统地检索7个数据库中的文献:Scopus、科学引文索引、EMBASE、护理学与健康领域数据库、心理学文摘数据库、美国计算机协会数字图书馆和考克兰图书馆。我们将仔细阅读并对选定的研究进行编码,以提取用于综合分析的原始数据和背景数据。研究之间的关系将根据研究所应用的框架、模型或理论的要素来确定。我们将相互转换这些要素,并打算为当前案例综合出电子健康发展的整体原则。

结果

检索策略已完成,数据提取几乎完成,首批综合分析方法正在进行中。检索共获得1224条引文,在应用选择标准后,剩余17篇文章。我们预计在2019年提交最终结果以供发表。

结论

本综述很重要,因为它旨在全面理解处于电子健康、心血管疾病和自我管理交叉点的多学科主题。与其他系统综述方法相比,元民族志的价值在于其综合方法旨在对一个主题产生新的理解,同时保留研究结果出现的社会和理论背景。我们的结果将展示这种方法在弥合电子健康研发的多学科差距方面有多么有用,为整体方法的重要性提供信息并推动其发展,同时展示针对心血管疾病自我管理案例的这种方法。

试验注册

PROSPERO CRD42018104397;https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=104397(由WebCite存档于http://www.webcitation.org/75H1kP1Mm)。

国际注册报告识别号(IRRID):DERR1-10.2196/13334。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8f4f/6664658/f87851568046/resprot_v8i7e13334_fig1.jpg

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