Department of Health Promotion and Policy, School of Public Health and Health Sciences, University of Massachusetts Amherst, MA, USA.
Men of Color Health Awareness (MOCHA), Springfield, MA, USA.
Int Q Community Health Educ. 2020 Jul;40(4):263-271. doi: 10.1177/0272684X19862931. Epub 2019 Jul 18.
African-American men continue to bear a disproportionate share of the burden of health disparities, in general, and chronic diseases, in particular. The Men of Color Health Awareness (MOCHA) Moving Forward study seeks to determine the effectiveness of an innovative, community-driven program to improve the health and quality of life of low-income African-American men between the ages of 35 to 70 years by reducing identified social risk factors for chronic disease for these men. The project uses digital storytelling (DST) to encourage African-American men to tell their stories, especially related to stress, gender role stereotypes, and mental and physical health and well-being. Thirty-six men were recruited to participate in one of four DST workshops, which resulted in each participant creating a 2- to 3-minute digital story. In this article, we describe and analyze three salient ethical dilemmas that arose in conducting the Men of Color Health Awareness Moving Forward study DST workshops with African-American men. The dilemmas can be traced to the distinct purposes for which DST can be used, data collection or intervention development, and the trade-offs between protecting and patronizing participants. We discuss potential ways to resolve or circumvent the identified issues.
非裔美国男性仍然承担着不成比例的健康差距负担，尤其是慢性疾病。《有色人种男性健康意识（MOCHA）向前迈进》研究旨在确定一种创新的、以社区为驱动的计划的有效性，该计划通过减少这些男性慢性疾病相关的社会风险因素，来改善 35 至 70 岁之间的低收入非裔美国男性的健康和生活质量。该项目使用数字故事讲述（DST）来鼓励非裔美国男性讲述自己的故事，尤其是与压力、性别角色刻板印象、心理和身体健康以及幸福有关的故事。36 名男性被招募参加四个 DST 工作坊之一，这导致每个参与者制作了一个 2 到 3 分钟的数字故事。在本文中，我们描述并分析了在与非裔美国男性进行《有色人种男性健康意识向前迈进》研究 DST 工作坊时出现的三个突出的伦理困境。这些困境可以追溯到 DST 可以用于的不同目的，即数据收集或干预措施的开发，以及保护和赞助参与者之间的权衡。我们讨论了潜在的解决或规避已确定问题的方法。
