Hacettepe University Faculty of Medicine, Department of Plastic, Reconstructive and Aesthetic Surgery. Hacettepe Cleft and Craniofacial Center, Ankara, Turkey.
Hacettepe University Faculty of Medicine, Department of Plastic, Reconstructive and Aesthetic Surgery. Hacettepe Cleft and Craniofacial Center, Ankara, Turkey.
J Pediatr Nurs. 2020 Mar-Apr;51:e39-e44. doi: 10.1016/j.pedn.2019.05.024. Epub 2019 Jul 16.
The present study aimed to highlight the feeding challenges of infants with cleft lip and/or palate (CLP) that caregivers encounter and analyze the alternative interventions they perform based on their experiences in the preoperative period.
Parents of 200 infants with CLP were asked to complete our questionnaire. The prenatal feeding preparations, preoperative processes, and feeding challenges and modifications to overcome these difficulties were evaluated.
One-third of the caregivers stated that they had received feeding education prenatally. Sixty-five percent of the parents stated that they were not successful in breastfeeding. Infants with isolated cleft lip had minor feeding difficulties, whereas the ones with cleft palate had some major challenges such as aspiration, choking, and inadequate growth. Parents also reported that 59.5% of the infants with cleft had stayed in the intensive care units following birth. Moreover, 42% of the infants were initially fed by nasogastric or orogastric tube. Out of the 166 infants with cleft palate, 31.9% used palatal obturators.
We have reviewed the various feeding difficulties of the infants with clefts and highlighted the results of the interventions performed to overcome these difficulties for better nutrition and growth.
In the light of our findings, further studies should be conducted and additional educational programs should be implemented for both healthcare providers and parents to increase families' awareness regarding cleft feeding, prevent unnecessary and improper feeding interventions in infants with clefts, and alleviate the burden of feeding difficulties for both parents and infants.
本研究旨在强调唇裂和/或腭裂（CLP）婴儿的喂养挑战，分析他们在术前阶段根据经验所采取的替代干预措施。
我们向 200 名 CLP 婴儿的父母发放问卷，评估他们的产前喂养准备、术前过程、喂养挑战以及为克服这些困难而进行的调整。
三分之一的护理人员表示他们在产前接受过喂养教育。65%的父母表示母乳喂养不成功。单纯唇裂婴儿的喂养困难较小，而腭裂婴儿则存在一些较大的挑战，如吸入、窒息和生长不足。父母还报告说，59.5%的 CLP 婴儿在出生后入住了重症监护病房。此外，42%的婴儿最初通过鼻胃管或口胃管喂养。在 166 名腭裂婴儿中，有 31.9%使用了腭护板。
我们回顾了唇腭裂婴儿的各种喂养困难，并强调了为克服这些困难而采取的干预措施的结果，以促进更好的营养和生长。
根据我们的发现，应该进行进一步的研究，并为医疗保健提供者和父母实施额外的教育计划，以提高家庭对唇腭裂喂养的认识，防止对唇腭裂婴儿进行不必要和不当的喂养干预，并减轻父母和婴儿的喂养困难负担。
