McNiven Abigail, Ryan Sara
Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, United Kingdom.
Department of Social Care and Social Work, Manchester Metropolitan University, Manchester, North West England, United Kingdom.
Front Psychol. 2022 Sep 15;13:968012. doi: 10.3389/fpsyg.2022.968012. eCollection 2022.
Skin conditions such as eczema and psoriasis are relatively prevalent health concerns in children, adolescents and young adults. Experiences of these dermatology diagnoses in adolescence have hitherto not been the focus of research, perhaps owing to assumptions that these diagnoses are not particularly impactful or intricate processes, events or labels. We draw on a thematic secondary analysis of in-depth interviews with 42 adolescents and young people living in the United Kingdom and, influenced by the sociologies of diagnosis and time, highlight the psychological, emotional, social and temporal complexities involved in their diagnosis experiences. Firstly, we describe how participants remembered, re- and co-constructed their diagnosis experiences during the interview. Secondly, we explore the pace and rhythm of diagnosis, including mis-diagnoses, highlighting the jarring potential for adolescents on being diagnosed, even for conditions typically deemed minor. Thirdly, we consider the ways in which these diagnoses have the capacity to reformulate notions of past, present and future, including projecting into imagined futures and reinterpreting past bodily sensations. Finally, we examine how memories about and the meaning of diagnosis are revisited, revised and potentially replaced as a child or adolescent grows older, and increases their management of their condition and encounters with healthcare professionals. In unsettling an assumption that diagnosis experiences for adolescents of common skin conditions is unproblematic or straightforward, our qualitative analysis critically engages with and contribute to tenets of health research that are of interest to quantitative and qualitative researchers, clinicians and patients.
湿疹和牛皮癣等皮肤疾病是儿童、青少年和年轻人中较为普遍的健康问题。迄今为止，青少年时期这些皮肤科诊断的经历尚未成为研究重点，这可能是由于人们认为这些诊断并非特别有影响力或复杂的过程、事件或标签。我们对42名生活在英国的青少年和年轻人进行了深入访谈，并进行了主题二次分析，受诊断社会学和时间社会学的影响，突出了他们诊断经历中所涉及的心理、情感、社会和时间复杂性。首先，我们描述了参与者在访谈中如何回忆、重新构建和共同构建他们的诊断经历。其次，我们探讨了诊断的速度和节奏，包括误诊，强调了即使是对于通常被认为是轻微病症的诊断，对青少年来说也可能产生的不和谐影响。第三，我们考虑这些诊断如何能够重新塑造过去、现在和未来的观念，包括投射到想象中的未来以及重新诠释过去的身体感觉。最后，我们研究随着儿童或青少年长大，他们对诊断的记忆和诊断的意义是如何被重新审视、修正并可能被取代的，以及他们如何加强对自身病情的管理以及与医疗保健专业人员的接触。通过打破青少年常见皮肤疾病诊断经历毫无问题或简单直接这一假设，我们的定性分析批判性地参与并为健康研究的原则做出了贡献，这些原则对定量和定性研究人员、临床医生和患者都具有重要意义。
