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本文引用的文献

1
On evidence-based medicine.论循证医学。
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2
Closing the health gap.缩小健康差距。
Scand J Public Health. 2017 Nov;45(7):723-731. doi: 10.1177/1403494817717433.
3
When is a randomised controlled trial health equity relevant? Development and validation of a conceptual framework.随机对照试验何时与健康公平相关?概念框架的开发与验证。
BMJ Open. 2017 Sep 25;7(9):e015815. doi: 10.1136/bmjopen-2016-015815.
4
Preventable Emergency Hospital Admissions Among Adults With Intellectual Disability in England.英格兰成年智障人士中可预防的急诊住院情况。
Ann Fam Med. 2017 Sep;15(5):462-470. doi: 10.1370/afm.2104.
5
The need for a complex systems model of evidence for public health.公共卫生证据的复杂系统模型的必要性。
Lancet. 2017 Dec 9;390(10112):2602-2604. doi: 10.1016/S0140-6736(17)31267-9. Epub 2017 Jun 13.
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Has evidence-based medicine ever been modern? A Latour-inspired understanding of a changing EBM.循证医学曾经是现代的吗?一种受拉图尔启发对不断变化的循证医学的理解。
J Eval Clin Pract. 2017 Oct;23(5):964-970. doi: 10.1111/jep.12752. Epub 2017 May 16.
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Progress in evidence-based medicine: a quarter century on.循证医学的进展:二十五年的历程。
Lancet. 2017 Jul 22;390(10092):415-423. doi: 10.1016/S0140-6736(16)31592-6. Epub 2017 Feb 17.
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Mortality in people with intellectual disabilities in England.英格兰智障人士的死亡率。
J Intellect Disabil Res. 2017 Jan;61(1):62-74. doi: 10.1111/jir.12314. Epub 2016 Aug 2.
9
Realist complex intervention science: Applying realist principles across all phases of the Medical Research Council framework for developing and evaluating complex interventions.现实主义复杂干预科学:在医学研究理事会制定和评估复杂干预措施的框架的所有阶段应用现实主义原则。
Evaluation (Lond). 2016 Jul;22(3):286-303. doi: 10.1177/1356389016652743. Epub 2016 Jun 2.
10
Response to Madans et al. Comments on Sabariego et al. Measuring Disability: Comparing the Impact of Two Data Collection Approaches on Disability Rates. Int. J. Environ. Res. Public Health, 2015, 12, 10329-10351.对马丹斯等人的回应。关于萨巴列戈等人的评论:测量残疾情况——比较两种数据收集方法对残疾率的影响。《国际环境研究与公共卫生杂志》,2015年,第12卷,第10329 - 10351页
Int J Environ Res Public Health. 2015 Dec 22;13(1):ijerph13010066. doi: 10.3390/ijerph13010066.

享有繁荣的社会决定因素的权利?残疾与公共卫生研究和政策的范例。

Rights to social determinants of flourishing? A paradigm for disability and public health research and policy.

机构信息

Leicester School of Allied Health Sciences, De Montfort University, Leicester, England, UK.

Department of Health Sciences, University of York, York, England, UK.

出版信息

BMC Public Health. 2019 Jul 24;19(1):997. doi: 10.1186/s12889-019-7334-8.

DOI:10.1186/s12889-019-7334-8
PMID:31340795
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6657058/
Abstract

BACKGROUND

The term evidence based medicine was introduced in the early 1990s in clinical medicine to educate clinicians about how to assess the 'credibility' of research to ensure best treatments for their patients. The evidence based medicine paradigm has become more diffuse in times of austerity and randomised controlled designs are being used to address complex issues in public health and disability research. This research is not addressing inequalities in terms of disability nor how people can live well with disabilities.

MAIN TEXT

We argue that there are four ways that public health research needs to change if it wants to address inequalities linked to disability: 1) rethinking theoretical connections between public health and disability; 2) building ethics and equity into interventions through a human rights approach; 3) ensuring ethical inclusion through intersectionality; and 4) evaluating policy and other social impacts to ensure they capture diversity. We argue that these are key issues to building a social determinants of flourishing.

CONCLUSIONS

We need to understand how disability might have an accumulative impact across the life course, as well as how to ensure equity for people living with disabilities. This means conceptualising a social determinants of flourishing where we evaluate how exactly randomised controlled trials and public health interventions, not only lead to greater equality but also ensure rights to health and wellbeing.

摘要

背景

循证医学一词于 20 世纪 90 年代初在临床医学中提出,旨在教育临床医生如何评估研究的“可信度”,以确保为患者提供最佳治疗。在紧缩时期,循证医学范式变得更加普及,随机对照设计被用于解决公共卫生和残疾研究中的复杂问题。然而,这项研究并没有解决残疾方面的不平等问题,也没有探讨人们如何在残疾的情况下过上美好生活。

主要文本

我们认为,如果公共卫生研究想要解决与残疾相关的不平等问题,需要进行以下四个方面的变革:1)重新思考公共卫生和残疾之间的理论联系;2)通过人权方法将伦理和公平纳入干预措施;3)通过交叉性确保伦理包容性;4)评估政策和其他社会影响,以确保其捕捉多样性。我们认为,这些是构建繁荣的社会决定因素的关键问题。

结论

我们需要了解残疾如何在整个生命周期中产生累积影响,以及如何确保残疾人生存的公平性。这意味着要将繁荣的社会决定因素概念化,评估随机对照试验和公共卫生干预措施如何不仅导致更大的平等,而且还确保健康和福祉的权利。