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骨质疏松症女性努力维持日常生活的体验。

Experiences of striving to maintain daily life among women with osteoporosis.

机构信息

a Division of Nursing, Department of Health Sciences, Luleå University of Technology , Luleå , Sweden.

出版信息

Int J Qual Stud Health Well-being. 2019 Dec;14(1):1647402. doi: 10.1080/17482631.2019.1647402.

DOI:10.1080/17482631.2019.1647402
PMID:31349764
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6711187/
Abstract

In order to describe how women with osteoporosis strive to maintain daily life we interviewed 11 women using a reflective lifeworld approach based on phenomenological analysis. Osteoporosis is a major public health concern in the Western world, and is predominant among women. Our findings indicated that meanings of striving to maintain daily life imply a belief in oneself and one's own capabilities. The women expressly speak out for themselves as a way of finding reconciliation without giving in to the illness. Women with osteoporosis expect to gain support early in the course of their illness. They require advice on how to manage the disease as well as support for striving to maintain daily living. Therefore, it is crucial that the women not only are given information about the disease. Equally important is to establish continuity in healthcare encounters, and that health care offers support founded in the women's lived experiences with focus on their capacities.

摘要

为了描述患有骨质疏松症的女性如何努力维持日常生活,我们采用基于现象学分析的反思性生活世界方法对 11 名女性进行了采访。骨质疏松症是西方世界的一个主要公共卫生问题,主要发生在女性中。我们的研究结果表明,努力维持日常生活的意义意味着对自己和自己能力的信念。这些女性明确地为自己发声,是一种找到和解而不屈服于疾病的方式。患有骨质疏松症的女性希望在疾病早期获得支持。她们需要有关如何管理疾病的建议以及对维持日常生活的支持。因此,至关重要的是,不仅要向女性提供有关该疾病的信息。同样重要的是要建立医疗保健的连续性,并确保医疗保健以女性的生活经历为基础,关注她们的能力,为其提供支持。

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本文引用的文献

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An overview and management of osteoporosis.骨质疏松症概述与管理
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Women's lived experiences of learning to live with osteoporosis: a longitudinal qualitative study.女性学习与骨质疏松症共处的生活经历:一项纵向定性研究。
BMC Womens Health. 2017 Mar 9;17(1):17. doi: 10.1186/s12905-017-0377-z.
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