Hansen Carrinna A, Abrahamsen Bo, Konradsen Hanne, Pedersen Birthe D
Institute of Clinical Research, Faculty of Health Sciences, University of Southern Denmark, Campusvej 55, 5230, Odense M, Denmark.
Department of Medicine C, Gentofte University Hospital, Kildegårdsvej 28, 2900, Hellerup, Denmark.
BMC Womens Health. 2017 Mar 9;17(1):17. doi: 10.1186/s12905-017-0377-z.
A vast amount of literature exists concerning pharmaceutical adherence in osteoporosis. However, the process of learning to live with osteoporosis over time remains largely unknown. The purpose of this study was to gain a deeper understanding of the continued process of how women learn to live with osteoporosis. Our objective was to explore what characterizes women's experiences of living with osteoporosis during the first year after diagnosis, when patients are prescribed anti-osteoporotic treatment, without having experienced an osteoporotic fracture.
Forty-two narrative qualitative interviews were conducted with fifteen recently diagnosed Danish women. A longitudinal design was chosen since this allows an investigation of the perspective over time. The interviews were conducted in the period of March 2011 to August 2012. Data were analyzed using a phenomenological-hermeneutic interpretation of text. No medical records were available for the researchers. All information with the exception of T-score was self-reported.
The participants' experiences could be described in two key themes developed through the analysis: 1) "To become influenced by the medical treatment" which consisted of two sub-themes "taking the medication", and "discontinuing the medication". 2) "Daily life with osteoporosis", which was characterized by three sub-themes: "interpretation of symptoms", "interpretation of the scan results" and "lifestyle reflections". The results highlighted that learning to live with osteoporosis is a multifaceted process that is highly influenced by the medical treatment. In some cases, this is a prolonged process that can take around one year.
The results suggest a need for improved support for individual women during the complex process of learning to live with osteoporosis. The study adds new knowledge that can be useful for healthcare professionals taking a health-oriented stance when supporting women in self-management of their illness. Further investigations of lived experiences over time in the field of osteoporosis research are therefore needed.
关于骨质疏松症药物依从性的文献大量存在。然而，随着时间推移学会与骨质疏松症共存的过程在很大程度上仍不为人所知。本研究的目的是更深入地了解女性如何学会与骨质疏松症共存的持续过程。我们的目标是探讨在诊断后第一年，患者在未经历骨质疏松性骨折且被开抗骨质疏松药物治疗时，女性与骨质疏松症共存经历的特征。
对15名最近被诊断出患有骨质疏松症的丹麦女性进行了42次叙事性定性访谈。选择纵向设计是因为这允许对一段时间内的观点进行调查。访谈在2011年3月至2012年8月期间进行。使用对文本的现象学 - 诠释学解释来分析数据。研究人员无法获取医疗记录。除T值外的所有信息均为自我报告。
参与者的经历可以通过分析得出的两个关键主题来描述：1）“受到药物治疗的影响”，由两个子主题“服药”和“停药”组成。2）“与骨质疏松症共存的日常生活”，其特征由三个子主题：“症状解读”、“扫描结果解读”和“生活方式反思”。结果强调，学会与骨质疏松症共存是一个多方面的过程，受到药物治疗的高度影响。在某些情况下，这是一个可能需要大约一年时间的漫长过程。
结果表明在女性学会与骨质疏松症共存的复杂过程中，需要为个体女性提供更好的支持。该研究增加了新的知识，这对于在支持女性自我管理疾病时采取以健康为导向立场的医疗保健专业人员可能有用。因此，需要在骨质疏松症研究领域进一步调查随着时间推移的生活经历。
