Department of Nursing, Physiotherapy and Occupational Therapy, Faculty of Nursing, University of Castilla-La Mancha, 13071 Ciudad Real, Spain.
Social and Health Research Center, University of Castilla-La Mancha, 16327 Cuenca, Spain,.
Int J Environ Res Public Health. 2019 Jul 30;16(15):2719. doi: 10.3390/ijerph16152719.
: Although the addition of patients in the process of shared decision-making can improve their recovery, there is a lack of knowledge about patients' and caregivers' perceptions on the management of pressure ulcers at home. : To explore the conceptualisations of patients with pressure ulcers and their caregivers on the barriers and facilitators for their involvement in home care and in the process of shared decision-making regarding the care provided. : A qualitative study based on grounded theory in a theoretical sample of 10 patients with pressure ulcers and 15 main caregivers from the health district of Puertollano (Spain). The data were based on semi-structured interviews, analysed using a coding process and the constant comparative method. Results: According to the participants, personal motivation and the involvement of primary care professionals facilitated their participation in the process of shared decision-making and generated feelings of positivity. In contrast, older age, having disabling pathologies, a low educational level or health paternalism were perceived as barriers for their involvement. : A non-paternalistic care model and personal motivation facilitate the process of shared decision-making in the care of people with pressure ulcers. Further studies are required to deepen the understanding of this phenomenon and examine the barriers and facilitators for the involvement of patients and caregivers in the management of these injuries in other contexts.
: 尽管在共享决策过程中增加患者可以提高他们的康复效果，但对于患者和护理人员对家庭中压疮管理的看法，我们知之甚少。: 为了探索压疮患者及其护理人员对其参与家庭护理和共享决策过程的障碍和促进因素的概念化，以了解护理的提供。: 这是一项基于扎根理论的定性研究，在理论样本中包括来自西班牙普埃托利亚诺（Puertollano）卫生区的 10 名压疮患者和 15 名主要护理人员。数据基于半结构化访谈，使用编码过程和恒定性比较方法进行分析。结果：根据参与者的说法，个人动机和初级保健专业人员的参与促进了他们参与共享决策过程，并产生了积极的感觉。相比之下，年龄较大、患有致残性疾病、教育水平低或卫生家长主义被认为是他们参与的障碍。: 非家长式护理模式和个人动机促进了压疮患者护理中的共享决策过程。需要进一步研究来深化对这一现象的理解，并研究患者和护理人员在其他环境中参与这些损伤管理的障碍和促进因素。
