Kumar Kapila, Kumar Sumit, Mehrotra Divya, Gupta Saurabh, Khandpur Sukhanshi, Mishra Raj Kumar
Department of Oral & Maxillofacial Surgery.
Department of Health Research-Multidisciplinary Research Unit, King George's Medical, University.
J Craniofac Surg. 2020 Jan/Feb;31(1):58-61. doi: 10.1097/SCS.0000000000005835.
The aim of this study was to evaluate the psychologic burden in terms of depression, anxiety, and stress among the parents of children with congenital craniofacial deformity, nonsyndromic cleft lip and/or palate (CL/P) with early and late diagnosis and/or treatment. In this study, total 240 patients were enrolled, out of which 72 were parents (either mother/father) of CL/P children, below 10 years (group A: before adolescence), 70 were parents of CL/P children, above 10 years of age (group B: after adolescence), and 98 were parents of children with no CL/P or any other genetic disorder (group C). Depression, anxiety, and stress scale-21 was administered in all groups after obtaining the informed consent. Mean ranks of group B revealed a higher score for all the 3 psychologic domains. The CL/P was further divided into only cleft lip, only cleft palate, and both cleft lip and palate groups. A statistically significant difference was observed in group B for all the psychologic domains. Analysis of variance was applied between the groups and a P-value <0.05 was considered as statistically significant. Analysis revealed severe to extremely severe depressed state of mind and moderate to severe levels of stress in maximum parents (above 20%) of group B. However, approximately 50% parents of group B showed extremely severe anxiety. Therefore, psychologic assessment helps in providing a psychiatric or psychologic counseling and treatment to the parents of CL/P children.
本研究的目的是评估先天性颅面畸形、非综合征性唇裂和/或腭裂（CL/P）患儿的父母在早期和晚期诊断及/或治疗过程中，在抑郁、焦虑和压力方面的心理负担。在本研究中，共纳入240例患者，其中72例是10岁以下CL/P患儿的父母（母亲/父亲）（A组：青春期前），70例是10岁以上CL/P患儿的父母（B组：青春期后），98例是无CL/P或任何其他遗传疾病患儿的父母（C组）。在获得知情同意后，对所有组进行了抑郁、焦虑和压力量表-21的测评。B组的平均秩次显示在所有3个心理领域得分更高。CL/P进一步分为仅唇裂、仅腭裂以及唇裂和腭裂均有组。在B组中，所有心理领域均观察到统计学上的显著差异。对各组进行方差分析，P值<0.05被认为具有统计学意义。分析显示，B组中大多数父母（超过20%）处于严重至极其严重的抑郁心境以及中度至重度的压力水平。然而，B组约50%的父母表现出极其严重的焦虑。因此，心理评估有助于为CL/P患儿的父母提供精神科或心理辅导及治疗。
