Center for Behavioral Cardiovascular Health, Department of Medicine, Columbia University Medical Center, New York, NY, USA.
J Intellect Disabil Res. 2020 Jan;64(1):38-44. doi: 10.1111/jir.12680. Epub 2019 Aug 1.
Emerging evidence suggests that parents of children with intellectual disabilities have poorer physical health than parents of typically developing children. However, it is unclear why. The purpose of this study was to examine differences in physical inactivity among a population-based sample of parents of children with and without Down syndrome.
Data for this analysis come from 11 waves (2005-2016) of the National Health Interview Survey, a U.S. nationally representative survey. Minutes per week of leisure-time physical activity were ascertained by self-report with physical inactivity defined as reporting no leisure-time physical activity. Parents were classified as (1) parents of typically developing children, (2) parents of children with Down syndrome, (3) parents of children with a developmental disability that had a high functional impact (autism, cerebral palsy, vision impairment or hearing impairment), (4) parents of children with an intellectual or developmental disability, but who did not have Down syndrome or a high-impact developmental disabilities, and (5) parents of children with other special health care needs.
Parents of children with Down syndrome were more likely to be physically inactive compared with parents of typical children (odds ratio [OR]: 1.51 [95% confidence interval, CI: 1.08, 2.12]) and had the lowest likelihood among all subgroups of parents to children with developmental disabilities or special health care needs. Parents of children with Down syndrome also had a significantly greater likelihood of being physically inactive compared with parents of children with other special health care needs (OR: 1.56 [95% CI: 1.11, 2.19]), with developmental disabilities without high functional impact (OR: 1.58 [95% CI: 1.12, 2.24]) and with developmental disabilities with high functional impact (OR: 1.46 [95% CI: 1.03, 2.08]).
Parents of children with Down syndrome are more likely to be physically inactive compared with parents of typically developing children and parents of children with other developmental disabilities or special health care needs. These findings suggest that parents of children with Down syndrome are a population in urgent need for interventions/programmes that promote physical activity, particularly as child well-being is linked to caregiver health.
新出现的证据表明，与发育正常的儿童的父母相比，智障儿童的父母身体健康状况较差。然而，原因尚不清楚。本研究的目的是检查基于人群的唐氏综合征患儿及其非唐氏综合征患儿父母在身体活动不足方面的差异。
本分析的数据来自美国全国代表性调查《全国健康访谈调查》的 11 个波次（2005-2016 年）。通过自我报告确定每周休闲时间的身体活动分钟数，将无休闲时间身体活动定义为报告无休闲时间身体活动。父母分为（1）发育正常儿童的父母，（2）唐氏综合征患儿的父母，（3）具有高功能影响的发育障碍（自闭症、脑瘫、视力障碍或听力障碍）患儿的父母，（4）无唐氏综合征或高功能发育障碍的智力或发育障碍患儿的父母，以及（5）具有其他特殊医疗需求的儿童的父母。
与发育正常儿童的父母相比，唐氏综合征患儿的父母更有可能身体活动不足（优势比[OR]：1.51 [95%置信区间，CI：1.08，2.12]），并且在所有具有发育障碍或特殊医疗需求的父母亚组中，他们的孩子最不可能进行身体活动。与其他有特殊医疗需求的儿童的父母相比，唐氏综合征患儿的父母更有可能身体活动不足（OR：1.56 [95% CI：1.11，2.19]），与没有高功能影响的发育障碍儿童（OR：1.58 [95% CI：1.12，2.24]）以及具有高功能影响的发育障碍儿童（OR：1.46 [95% CI：1.03，2.08]）相比。
与发育正常的儿童的父母相比，唐氏综合征患儿的父母更有可能身体活动不足，与其他发育障碍或特殊医疗需求的儿童的父母相比也是如此。这些发现表明，唐氏综合征患儿的父母是一个急需干预/计划来促进身体活动的人群，特别是因为儿童的幸福与照顾者的健康有关。
