School of Social Sciences, Heriot-Watt University, Mary Burton Building, Edinburgh, UK.
Soc Sci Med. 2019 Sep;237:112447. doi: 10.1016/j.socscimed.2019.112447. Epub 2019 Jul 25.
This article extends deservingness debates in social welfare to a new domain by exploring how deservingness features in the experiences of people who are in paid work when diagnosed with cancer. In doing so, it explores the interrelationship between deservingness criteria and Parsons' sick role. Narrative interview data was collected from people with cancer who were employed when they were diagnosed (n = 14) and line managers with experience of managing an employee with cancer (n = 7). Semi-structured interviews were conducted with members of occupational health and human resources staff (n = 3), health care professionals (n = 5) and staff from a UK cancer support charity (n = 7). Data was analysed thematically. Deservingness featured, and mattered, in how participants understood cancer in relation to work, and ensuing workplace interactions. Though cancer was generally seen as deserving; employees with cancer were perceived to be in need, and not blamed for their condition, this deservingness was subject to question. Employees with cancer were not necessarily considered equally deserving, dependent on their contribution as workers pre-diagnosis, and their efforts to contribute since being diagnosed. In a reflection of the fixed-term, time constricted nature of the sick role, work and welfare institutions required a definite timeline for employees to return to, or depart from work. The paper evidences an important gap between the fixed sick role as perceived by employers and the UK state welfare system, and the complex experiences of people diagnosed with cancer when in paid work.
本文通过探讨有薪工作的癌症患者的经历中体现的应得感特征,将社会福利中的应得感问题扩展到一个新的领域。在这样做的过程中,它探讨了应得感标准和帕森斯的病患角色之间的相互关系。从被诊断患有癌症时仍在工作的人(n=14)和有管理癌症员工经验的直线经理(n=7)那里收集了叙事访谈数据。对职业健康和人力资源工作人员(n=3)、医疗保健专业人员(n=5)和英国癌症支持慈善机构的工作人员(n=7)进行了半结构化访谈。数据进行了主题分析。在参与者理解癌症与工作的关系以及随之而来的工作场所互动方面,应得感很重要,而且受到关注。尽管癌症通常被认为是应得的;但患有癌症的员工被认为有需要,但不会因患病而受到指责,这种应得感受到质疑。患有癌症的员工并不一定被认为是同等应得的,这取决于他们在诊断前作为工人的贡献,以及他们自诊断以来为做出贡献所付出的努力。反映出病患角色的定期、时间限制的性质,工作和福利机构需要一个明确的时间表,让员工返回或离开工作岗位。本文证明了雇主和英国国家福利制度所认为的固定病患角色与有薪工作的癌症患者的复杂经历之间存在重要差距。