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与帕金森病患者讨论性行为:一项针对神经科医生的跨国调查。

Discussing sexuality with Parkinson's disease patients: a multinational survey among neurologists.

机构信息

Department of Urology, Leiden University Medical Center, Albinusdreef 2, 2300 RC, Leiden, The Netherlands.

Department of Neurology, University Medical Center Hamburg-Eppendorf, Martinistraβe 52, 20246, Hamburg, Germany.

出版信息

J Neural Transm (Vienna). 2019 Oct;126(10):1273-1280. doi: 10.1007/s00702-019-02053-5. Epub 2019 Aug 8.

Abstract

Sexual dysfunction is a major non-motor feature of Parkinson's disease (PD) that may affect the quality of life of many patients. In a Dutch survey, we demonstrated that neurologists often fail to discuss sexuality with their patients. Our objective was to determine to which extent neurologists in Spain and Germany address sexuality with their patients and whether cross-cultural differences exist. A 30-item questionnaire was sent out to 1650 German and 460 Spanish neurologists. The questionnaire addressed attitudes, knowledge, barriers, and feelings of responsibility regarding sexuality in PD. 160 German and 32 Spanish respondents completed and returned the questionnaire. The majority of German and Spanish participants discuss sexual dysfunction 'regularly' with male patients (61.7% and 78.9%, respectively), but 'seldom' with female patients (68.8% and 78.1%, respectively). Important barriers for German and Spanish respondents to discuss sexual dysfunction were patients not expressing sexual complaints spontaneously (52.9% and 75.0%, respectively) and insufficient consultation time (32.2% and 71.9%, respectively). Sexual dysfunction in PD was considered important by 68.3% of German and 96.9% of Spanish participants. German and Spanish neurologists do not routinely discuss sexual dysfunction with their patients, although many of them consider it important to address this topic. It is unclear why this lack of discussing sexual dysfunction is especially found for female patients and whether cultural aspects are involved. We recommend a self-assessment tool for patients to track their symptoms prior to consultation visits and advocate local guidelines that formulate who is responsible for discussing sexual dysfunction.

摘要

性功能障碍是帕金森病(PD)的主要非运动特征之一,可能会影响许多患者的生活质量。在一项荷兰调查中,我们发现神经科医生经常未能与患者讨论性问题。我们的目的是确定西班牙和德国的神经科医生在多大程度上与他们的患者讨论性问题,以及是否存在跨文化差异。我们向 1650 名德国和 460 名西班牙神经科医生发送了一份包含 30 个问题的问卷。问卷涉及 PD 患者的性态度、知识、障碍和责任感。160 名德国和 32 名西班牙受访者完成并返回了问卷。大多数德国和西班牙参与者定期与男性患者讨论性功能障碍(分别为 61.7%和 78.9%),但很少与女性患者讨论(分别为 68.8%和 78.1%)。德国和西班牙受访者在讨论性功能障碍方面的重要障碍是患者没有自发表达性抱怨(分别为 52.9%和 75.0%)和咨询时间不足(分别为 32.2%和 71.9%)。68.3%的德国和 96.9%的西班牙参与者认为 PD 中的性功能障碍很重要。德国和西班牙的神经科医生并没有定期与他们的患者讨论性功能障碍,尽管他们中的许多人认为讨论这个话题很重要。尚不清楚为什么这种缺乏讨论性功能障碍的情况在女性患者中尤为明显,以及是否涉及文化方面的因素。我们建议患者在就诊前使用自我评估工具来跟踪他们的症状,并倡导制定谁负责讨论性功能障碍的当地指南。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c7c/6765045/1c4ba5701c2c/702_2019_2053_Fig1_HTML.jpg

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