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危地马拉血液透析患者的流行病学和社会经济概况:通过免费获取信息系统进行评估和传播。

Epidemiologic and socioeconomic profile of Guatemalan hemodialysis patients: Assessment and dissemination via a free-access information system.

作者信息

Lou-Meda Randall M, Valle Ana Lucía, Urla Carlos, Mazariegos Jacobo

出版信息

Clin Nephrol. 2020 Supplement-Jan;93(1):76-81. doi: 10.5414/CNP92S113.

DOI:10.5414/CNP92S113
PMID:31397266
Abstract

There is wide variation in the presence of renal replacement therapy (RRT) registries throughout the world, which is a major obstacle to designing and implementing coordinated strategies for chronic kidney disease care and resource planning. Guatemala does not have a national registry of patients on RRT. We describe the result of a cross-sectional study at a national level on epidemiologic and socioeconomic characteristics of hemodialysis patients in Guatemala: most patients were male (57%), above the age of 20 (90%), unemployed (60%), married or in a civil union (53%), had an elementary school education (47%), and living in the geographical clusters in the south of the country. We also describe a free-access website created with the results of the study. Given that Guatemala is still years away from a complete national registry, this information can be used by interested parties in the meantime to promote rational use of limited resources and to inform data-driven health policies.

摘要

世界各地肾脏替代治疗(RRT)登记处的情况差异很大,这是设计和实施慢性肾脏病护理协调策略及资源规划的主要障碍。危地马拉没有RRT患者的国家登记处。我们描述了一项关于危地马拉血液透析患者流行病学和社会经济特征的全国性横断面研究结果:大多数患者为男性(57%),年龄在20岁以上(90%),失业(60%),已婚或处于民事结合关系(53%),接受过小学教育(47%),居住在该国南部的地理集群地区。我们还介绍了一个根据研究结果创建的免费访问网站。鉴于危地马拉距离建立完整的国家登记处仍有几年时间,在此期间,感兴趣的各方可以利用这些信息来促进有限资源的合理使用,并为基于数据的卫生政策提供参考。

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