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垂死自我的医学化:晚期癌症中对生命延长的探索。

The medicalisation of the dying self: The search for life extension in advanced cancer.

机构信息

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada.

Centre for Critical Qualitative Health Research (CQ), Toronto, ON, Canada.

出版信息

Nurs Inq. 2020 Jan;27(1):e12316. doi: 10.1111/nin.12316. Epub 2019 Aug 9.

Abstract

Although many studies have previously examined medicalisation, we add a new dimension to the concept as we explore how contemporary oncological medicine shapes the dying self as predominantly medical. Through an analysis of multiple case studies collected within a comprehensive cancer centre in Ontario, Canada, we examine how people with late-stage cancer and their healthcare providers enacted the process of medicalisation through engaging in the search for oncological treatments, such as experimental drug trials, despite the incurability of their disease. The seven cases included 20 interviews with patients, family, physicians and nurses, the analysis of 30 documents and 5 hr of field observation. A poststructural perspective informed our study. We propose that searching for life extension enacts medicalisation by shaping the dying person afflicted with terminal cancer into new medical subjectivities that are knowledgeable, active, entrepreneurial and curative. Participants initially took up medical thinking from the formal oncology system, but then began to apply and internalise medical rationalities to alter their personhood, thereby generating new curative possibilities for themselves. For people seeking life extension, the embodied and day-to-day experiences of suffering and being close to death became expressed and moderated in fundamentally medicalised terms.

摘要

虽然先前有许多研究考察了医学化现象,但我们通过分析在加拿大安大略省一家综合性癌症中心收集的多个案例研究,探讨了晚期癌症患者及其医疗保健提供者如何通过寻求肿瘤治疗(如实验性药物试验)来实施医学化过程,尽管他们的疾病无法治愈,从而为该概念增添了新的维度。这七个案例包括对 20 名患者、家属、医生和护士的访谈,对 30 份文件的分析和 5 小时的现场观察。后结构主义视角为我们的研究提供了信息。我们提出,通过将患有晚期癌症的临终者塑造成具有知识、积极主动、创业精神和治疗性的新医学主体,寻找延长生命的方法会实施医学化。参与者最初从正规肿瘤学系统中接受医学思维,但随后开始应用和内化医学推理来改变自己的人格,从而为自己创造新的治疗可能性。对于寻求延长生命的人来说,痛苦和接近死亡的身体和日常体验以根本上医学化的术语表达和调节。

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