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“我陷入危机是因为……”:关怀伦理与缓和医疗中的道德困境。

"I go into crisis when …": ethics of care and moral dilemmas in palliative care.

机构信息

Unit of Bioethics, Azienda USL-IRCCS di Reggio Emilia, Via Amendola 2, 42122, Reggio Emilia, Italy.

Psycho-oncology Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

出版信息

BMC Palliat Care. 2019 Aug 9;18(1):70. doi: 10.1186/s12904-019-0453-2.

DOI:10.1186/s12904-019-0453-2
PMID:31399094
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6689155/
Abstract

BACKGROUND

Recognising and knowing how to manage ethical issues and moral dilemmas can be considered an ethical skill. In this study, ethics of care is used as a theoretical framework and as a regulatory criterion in the relationship among healthcare professionals, patients with palliative care needs and family members. This study is a part of a larger project aimed at developing and implementing a training programme on "ethical communication" addressed to professionals caring for patients with palliative care needs. The aim of this study was comprehending whether and how the ethics of care informs the way healthcare professionals make sense of and handle ethical issues in palliative care.

METHODS

Qualitative study employing a theoretically driven thematic analysis performed on semi-structured interviews. The research was conducted in a clinical cancer centre in northern Italy. Eligible participants were physicians and nurses from eleven hospital wards who assisted patients with chronic advanced disease daily and had previously attended a 4-h training on palliative care held by the hospital Palliative Care Unit.

RESULTS

The researchers identified five themes: morality is providing global care; morality is knowing how to have a relationship with patients; morality is recognizing moral principles; moral dimension and communication; and moral dilemmas are individual conflicts.

CONCLUSIONS

Ethics of care seems to emerge as a theoretical framework that includes the belief systems of healthcare professionals, especially those assisting patients with palliative care needs; moreover, it allows the values of both the patients and professionals to come to light through the relationship of care. Ethics of care is also appropriate as a framework for ethical training.

摘要

背景

识别和了解如何处理伦理问题和道德困境可以被视为一种伦理技能。在这项研究中,关怀伦理被用作理论框架和监管标准,用于医疗保健专业人员、有姑息治疗需求的患者和家庭成员之间的关系。这项研究是一个更大项目的一部分,该项目旨在开发和实施一项针对姑息治疗护理专业人员的“伦理沟通”培训计划。本研究的目的是理解关怀伦理是否以及如何告知医疗保健专业人员如何理解和处理姑息治疗中的伦理问题。

方法

采用理论驱动的主题分析的定性研究,对来自意大利北部一家临床癌症中心的 11 个病房的医生和护士进行了半结构化访谈。合格的参与者是每天为慢性晚期疾病患者提供帮助并参加过医院姑息治疗单位举办的 4 小时姑息治疗培训的医生和护士。

结果

研究人员确定了五个主题:道德是提供全面护理;道德是知道如何与患者建立关系;道德是认识道德原则;道德维度和沟通;道德困境是个人冲突。

结论

关怀伦理似乎是一种理论框架,它包含了医疗保健专业人员的信仰体系,特别是那些为姑息治疗需求患者提供帮助的人员的信仰体系;此外,它通过关怀关系揭示了患者和专业人员的价值观。关怀伦理也适合作为伦理培训的框架。

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