阿巴拉契亚地区中风后的生活。
Life after stroke in Appalachia.
作者信息
Theeke Laurie, Lucke-Wold A Noelle, Mallow Jennifer, Horstman Patricia
机构信息
West Virginia University School of Nursing, Health Sciences South, PO Box 9620, Morgantown, WV 26506-9620, United States.
West Virginia University HealthCare, 1 Medical Center Drive, Morgantown, WV 26506, United States.
出版信息
Int J Nurs Sci. 2017 Mar 10;4(2):105-111. doi: 10.1016/j.ijnss.2017.02.005. eCollection 2017 Apr 10.
OBJECTIVE
The purpose of this study was to describe the structure of meaning in the experience of surviving stroke for adults living in Appalachia.
METHODS
This qualitative phenomenological study includes a sample of 6 adult survivors of ischemic stroke who were discharged from either a community or university hospital to home in the Appalachian region. Data was collected through semi-structured interviews, transcribed, and analyzed thematically by two investigators. The explicated themes were verified by the survivors as representative of their experience.
RESULTS
Five main themes emerged: 1) Frustration with new physical and functional impairment, 2) Negative emotions including anger, guilt, loneliness, and depression 3) Need for accessible support, 4) Longing for home during recovery and, 5) Stepping forward after stroke which included sub-themes of perseverance, acceptance, and retraining. Anger was described as contributing to delayed recover and emotional lability was described as a source of anger. The familiarity of home was viewed as key to reestablishing control over one's life. Survivors described how they developed perseverance to move forward and emphasized that willingness to participate in retraining led to adapting to impairments. Acceptance was described as letting go of prior expectations of self and others so one could live in the present.
目的
本研究旨在描述阿巴拉契亚地区成年中风幸存者经历中的意义结构。
方法
这项定性现象学研究包括6名缺血性中风成年幸存者的样本，他们从社区或大学医院出院后回到阿巴拉契亚地区的家中。通过半结构化访谈收集数据，进行转录，并由两名研究人员进行主题分析。所阐述的主题经幸存者确认为代表他们的经历。
结果
出现了五个主要主题：1）对新的身体和功能障碍感到沮丧，2）包括愤怒、内疚、孤独和抑郁在内的负面情绪，3）需要可获得的支持，4）康复期间对家的渴望，以及5）中风后向前迈进，其中包括毅力、接受和再训练等子主题。愤怒被描述为导致恢复延迟的因素，情绪不稳定被描述为愤怒的一个来源。家的熟悉感被视为重新掌控自己生活的关键。幸存者描述了他们如何培养向前迈进的毅力，并强调参与再训练的意愿导致了对障碍的适应。接受被描述为放下对自己和他人先前的期望，以便能够活在当下。
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