Valencia-Rico Claudia Liliana, Burbano-López Consuelo
Programa de Enfermería, Universidad Católica de Manizales, Manizales, Caldas, Colombia.
Escuela de Enfermería, Universidad del Valle, Cali, Valle del Cauca, Colombia.
Enferm Clin (Engl Ed). 2020 Sep-Oct;30(5):309-316. doi: 10.1016/j.enfcli.2019.05.012. Epub 2019 Aug 10.
To determine the meaning of the experience of people with chronic obstructive pulmonary disease.
A qualitative approach study rooted in hermeneutic phenomenology. In-depth interviews were conducted with 10 people with critical and severe chronic obstructive pulmonary disease.
The findings obtained are described in three emerging topics and their consequent subtopics, which describe the process of the disease focusing on five subtopics related to awareness of the disease, the choking characteristic of the disease and tiredness as daily unpleasant symptoms, as well as choking as a death threat, rejection of oxygen dependency and coping systems to control the disease. In the second topic, family support with two subtopics are described: the loss of the patient's role, the burden of care; and the third topic concerns the support of health system on two subtopics: medical care and nursing care.
The symptoms and functional changes in general, denote a different meaning not only in everyday life, but also in times of exacerbation of the condition. Likewise, changes in lifestyle due to the loss of roles and health care processes are revealed, as experiences that do not allow effective coping and adaptation.
确定慢性阻塞性肺疾病患者的经历的意义。
一项基于诠释现象学的定性研究。对10名患有重度和极重度慢性阻塞性肺疾病的患者进行了深入访谈。
所得结果在三个新出现的主题及其相应子主题中进行了描述，这些主题描述了疾病过程，重点关注与疾病认知、疾病的窒息特征和作为日常不适症状的疲劳相关的五个子主题，以及作为死亡威胁的窒息、对氧依赖的抗拒和控制疾病的应对系统。在第二个主题中，描述了有两个子主题的家庭支持：患者角色的丧失、护理负担；第三个主题涉及卫生系统的支持，有两个子主题：医疗护理和护理。
一般来说，症状和功能变化不仅在日常生活中，而且在病情加重时都具有不同的意义。同样，由于角色丧失和医疗保健过程而导致的生活方式变化也被揭示出来，这些经历无法实现有效的应对和适应。
