对依赖氧气的慢性阻塞性肺疾病患者生命终点的思考：一项定性访谈研究。
Thoughts on the end of life in patients with oxygen-dependent chronic obstructive pulmonary disease: A qualitative interview study.
机构信息
Department of Health, Blekinge Institute of Technology, Karlskrona, Sweden.
Department of Medical Sciences, Respiratory-, allergy- and sleep research, Uppsala University, Uppsala, Sweden.
出版信息
Nurs Open. 2023 Apr;10(4):2158-2164. doi: 10.1002/nop2.1463. Epub 2022 Nov 5.
AIM
The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long-term oxygen treatment think about and expect end-of-life.
DESIGN
A qualitative design was used.
METHODS
A purposeful sample of 19 patients with oxygen-dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi-structured interviews and analysed using a hermeneutic approach.
RESULTS
The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should invite them to mutual discussions as it was easier to reject an invitation if they could not talk right then, than to initiate a discussion themselves. Start of home oxygen or a deteriorating health status may be an important time to clinically address existential and end-of-life issues.
目的
本研究旨在深入了解慢性阻塞性肺疾病（COPD）患者和长期氧疗患者对临终的看法和预期。
设计
采用定性设计。
方法
从瑞典呼吸衰竭登记处（Swedevox）中选择了 19 名依赖氧气的 COPD 患者进行有目的的抽样。采用半结构式访谈收集数据，并采用诠释学方法进行分析。
结果
分析结果揭示了三个主题：活在当下，没有未来；难以谈论不确定性；对留下家人感到焦虑。参与者表示，医护人员应邀请他们进行共同讨论，因为如果他们不能立即进行讨论，拒绝邀请比主动发起讨论更容易。开始家庭氧疗或健康状况恶化可能是临床解决存在和临终问题的重要时机。
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