Department of Nursing, Faculty of Health Sciences, Atılım University, İncek, Ankara, Turkey.
Pediatric Nursing Department, Faculty of Nursing, Hacettepe University, Sıhhiye, Ankara, Turkey.
J Pediatr Nurs. 2020 Jan-Feb;50:e99-e106. doi: 10.1016/j.pedn.2019.08.007. Epub 2019 Aug 19.
The purpose of the present study was to examine maternal pain management in children with cancer and the associated factors.
The present work is a descriptive and cross-sectional study. Data for the study were obtained from mothers of children in the age group of 0 to 18 years undergoing treatment for solid tumors in Pediatric Oncology Service and Outpatient Clinics (n = 112). We used a questionnaire on parental pain management practices at home, the knowledge about pain and analgesic drugs, Spielberger State-Trait Anxiety Inventory (STAI), and Pain Catastrophizing Scale (PCS) to collect the data.
Several mothers taking part in the study reported various misconceptions about the assessment of children's pain, analgesic drugs, and usage of limited non-pharmacological methods for managing pain in children with cancer. No significant relationships were found between mothers' pain management practices, knowledge of pain assessment and analgesic drugs, and mothers' and children's sociodemographic characteristics or mothers' pain catastrophizing and anxiety about their own pain.
The findings of the study revealed that the majority of mothers of children with cancer had misconceptions regarding knowledge of pain assessment and analgesic drugs; these misconceptions potentially lead to manage children's pain associated with cancer ineffectively. Findings indicate mothers' information and support needs for children's cancer pain management in the home settings.
A further understanding of barriers to parental pain management in children with cancer in the home setting will contribute immensely in developing appropriate management practices.
本研究旨在探讨儿童癌症患者的母亲的疼痛管理及其相关因素。
本研究为描述性和横断面研究。研究数据来自在儿科肿瘤服务和门诊诊所（n=112）接受治疗的 0 至 18 岁实体瘤患儿的母亲。我们使用了一份关于家庭中父母疼痛管理实践、疼痛和镇痛药物知识、斯皮尔伯格状态-特质焦虑量表（STAI）和疼痛灾难化量表（PCS）的问卷来收集数据。
参与研究的一些母亲报告了对儿童疼痛评估、镇痛药物以及在癌症儿童中使用有限的非药物方法管理疼痛的各种误解。母亲的疼痛管理实践、疼痛评估和镇痛药物知识与母亲和儿童的社会人口学特征或母亲的疼痛灾难化和对自身疼痛的焦虑之间没有显著关系。
研究结果表明，大多数癌症患儿的母亲对疼痛评估和镇痛药物知识存在误解；这些误解可能导致对癌症相关儿童疼痛的管理无效。研究结果表明，母亲在家庭环境中对儿童癌症疼痛管理的信息和支持需求。
进一步了解家庭环境中儿童癌症患者父母疼痛管理的障碍，将对制定适当的管理实践有很大帮助。
