Sukeri Surianti, Bakar Raishan S, Othman Azizah, Ibrahim Mohd I
Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kelantan, Malaysia.
Department of Psychiatry, School of Medical Sciences, Universiti Sains Malaysia, Kelantan, Malaysia.
J Taibah Univ Med Sci. 2017 Jun 13;12(5):424-429. doi: 10.1016/j.jtumed.2017.05.002. eCollection 2017 Oct.
The present study aimed to determine the barriers that deter mothers of children with disabilities from attaining their unmet needs.
In-depth interviews of 12 mothers of children with disabilities were conducted from November 2014 to January 2015 in Kelantan, Malaysia. The mothers were recruited by purposive sampling. Thematic analysis was used for identifying, analysing and reporting the data.
Barriers to the unmet needs among mothers of children with disabilities were found to stem from the mothers' expectation and further propagated by lack of support, the role of healthcare professionals in providing care, inappropriate policies and shortage of resources required for survival and maintaining care.
Identification of the barriers to the attainment of unmet needs among mothers of disabled children is crucial for resolving the issue of unmet needs. Deeper understanding of these barriers may facilitate positive actions toward addressing the needs of these mothers and to alleviate the stress on mothers of disabled children. A concerted effort to coordinate services across all disciplines is required to dismantle these barriers by improving the provision of health care delivery and evaluation of welfare policies and services.
本研究旨在确定阻碍残疾儿童母亲满足其未得到满足的需求的障碍。
2014年11月至2015年1月在马来西亚吉兰丹对12名残疾儿童母亲进行了深入访谈。通过目的抽样招募母亲。采用主题分析法对数据进行识别、分析和报告。
发现残疾儿童母亲未得到满足的需求的障碍源于母亲的期望，并因缺乏支持、医疗保健专业人员在提供护理方面的作用、不合适的政策以及生存和维持护理所需资源短缺而进一步加剧。
识别残疾儿童母亲未得到满足的需求的障碍对于解决未得到满足的需求问题至关重要。对这些障碍的更深入理解可能有助于采取积极行动来满足这些母亲的需求，并减轻残疾儿童母亲的压力。需要通过改善医疗保健服务的提供以及福利政策和服务的评估，齐心协力协调所有学科的服务，以消除这些障碍。
