Vance David E, Jensen Michael, Tende Frida, Walker Teresa J, Robinson Josiah, Diehl Delaney, Fogger Susanne A, Fazeli Pariya L
J Psychosoc Nurs Ment Health Serv. 2019 Dec 1;57(12):48-55. doi: 10.3928/02793695-20190821-03. Epub 2019 Aug 22.
Approximately 50% of persons with HIV (PWH) meet the cognitive criteria for HIV-associated neurocognitive disorder (HAND). Informing PWH they may have HAND raises concerns given the lack of consensus-derived treatment options and overall knowledge about HAND. Thus, the current qualitative descriptive study aimed to describe PWHs' reactions to a possible diagnosis of HAND. Cognitive tests were administered to 135 PWH to determine whether they met the criteria for HAND. From 135 PWH, 109 (80.7%) participants met the cognitive criteria and were informed about their probable HAND diagnosis. Approximately 2 months later, the remaining 85 participants (24 were lost to attrition) were asked about their reactions and concerns to receiving a probable diagnosis of HAND. Their responses were thematically coded. Themes that emerged were Desire to Improve, Confirmation, Not Concerned/No Reaction, Concerned, Unexpected, Anxiety, Knowledge Seeking, and Sadness. Most themes were positive or neutral, whereas fewer negative themes were observed. Thematic/content analysis appeared to show that most PWH reacted well to their probable diagnosis and were open to ways to improve their brain health. Such openness represents a window to provide health education to patients. Implications for practice and research are provided. [Journal of Psychosocial Nursing and Mental Health Services, 57(12), 48-55.].
约50%的艾滋病毒感染者(PWH)符合与艾滋病毒相关的神经认知障碍(HAND)的认知标准。鉴于缺乏基于共识的治疗方案以及对HAND的整体了解,告知PWH他们可能患有HAND会引发担忧。因此,当前的定性描述性研究旨在描述PWH对可能被诊断为HAND的反应。对135名PWH进行了认知测试,以确定他们是否符合HAND的标准。在这135名PWH中,109名(80.7%)参与者符合认知标准,并被告知他们可能被诊断为HAND。大约两个月后,询问了其余85名参与者(24名失访)对可能被诊断为HAND的反应和担忧。对他们的回答进行了主题编码。出现的主题有改善的愿望、确认、不担心/无反应、担心、意外、焦虑、求知和悲伤。大多数主题是积极或中性的,而消极主题较少。主题/内容分析似乎表明,大多数PWH对他们可能的诊断反应良好,并愿意接受改善大脑健康的方法。这种开放性为向患者提供健康教育提供了一个窗口。文中还给出了对实践和研究的启示。[《心理社会护理与心理健康服务杂志》,57(12),48 - 55。]