Work Research Institute, Oslo Metropolitan University, PO. Box 4, St. Olavs Plass, NO-0130 Oslo, Norway.
Law and Science and Technology Studies (LSTS), Free University of Brussels (VUB), 1050 Brussels, Belgium.
Int J Environ Res Public Health. 2019 Aug 21;16(17):3023. doi: 10.3390/ijerph16173023.
The Ebola epidemic in West Africa between 2014 and 2015 was the deadliest since the discovery of the virus four decades ago. With the second-largest outbreak of Ebola virus disease currently raging in the Democratic Republic of the Congo, (DRC) it is clear that lessons from the past can be quickly forgotten-or be incomplete in the first instance. In this article, we seek to understand the health challenges facing marginalised people by elaborating on the multiple dimensions of marginalisation in the case of the West Africa Ebola epidemic. We trace and unpack modes of marginalisation, beginning with the "outbreak narrative" and its main components and go on to examine other framings, including the prioritisation of the present over the past, the positioning of 'Us versus Them'; and the marginalisation-in responses to the outbreak-of traditional medicine, cultural practices and other practices around farming and hunting. Finally, we reflect on the 'lessons learned' framing, highlighting what is included and what is left out. In conclusion, we stress the need to acknowledge-and be responsive to-the ethical, normative framings of such marginalisation.
2014 年至 2015 年期间,西非爆发的埃博拉疫情是该病毒发现四十年来最致命的一次。目前,刚果民主共和国(DRC)正在爆发第二大埃博拉病毒病疫情,很明显,过去的经验教训可能很快被遗忘,或者最初并不完整。在本文中,我们通过阐述西非埃博拉疫情中边缘化的多个维度,来了解边缘化人群面临的健康挑战。我们追溯和剖析了边缘化的模式,从“疫情叙事”及其主要构成开始,然后考察了其他框架,包括对现在相对于过去的重视、“我们与他们”的定位;以及对传统医学、文化习俗和农业及狩猎相关习俗的边缘化反应。最后,我们反思了“经验教训”的框架,强调了所包含和遗漏的内容。最后,我们强调需要承认并回应这种边缘化的伦理、规范框架。