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“全程优质护理”贯穿前列腺癌诊疗路径:患者和医护人员的观点

"Good care" throughout the prostate cancer pathway: Perspectives of patients and health professionals.

机构信息

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

出版信息

Eur J Oncol Nurs. 2019 Oct;42:36-41. doi: 10.1016/j.ejon.2019.06.011. Epub 2019 Jul 2.

DOI:10.1016/j.ejon.2019.06.011
PMID:31446262
Abstract

PURPOSE

Men in follow up for prostate cancer represent the largest proportion of patients with the illness. In the United Kingdom, primary care is increasingly involved in caring for these patients. Little is known however regarding the factors that determine men's evaluation of their care and primary healthcare professionals' perceptions of the care they provide. This study aimed to investigate patient and primary care based health professionals' perspectives of what constitutes 'good care' for men with prostate cancer, including limiting or facilitating factors.

METHOD

Semi-structured interviews were conducted with ten patients and eight primary care based healthcare professionals and thematically analysed in collaboration with a patient representative group.

RESULTS

Good care was identified by patient participants, with aspects of communication, including information, active participation, sensitivity of approach and context being highlighted. Healthcare professionals also prioritised communication as the basis of good care and recognised the benefits of locally based services.

CONCLUSIONS

Treatments in prostate and other cancers continue to improve with corresponding increases in survival. To further develop and sustain the good care that patients require to help them cope with diagnosis, treatment and long term adjustment, investment in resources, training and innovative communication systems between patients, generalist and specialist services are required.

摘要

目的

接受前列腺癌随访的男性患者是该疾病患者中比例最大的群体。在英国,初级保健越来越多地参与到这些患者的护理中。然而,人们对决定男性对其护理的评价以及初级保健专业人员对其提供的护理的看法的因素知之甚少。本研究旨在调查男性前列腺癌患者和基于初级保健的卫生专业人员对“良好护理”的看法,包括限制或促进因素。

方法

对 10 名患者和 8 名基于初级保健的医疗保健专业人员进行了半结构化访谈,并与患者代表小组合作进行了主题分析。

结果

患者参与者确定了良好的护理,包括沟通方面,如信息、积极参与、敏感性和环境。医疗保健专业人员也将沟通作为良好护理的基础,并认识到基于本地的服务的好处。

结论

前列腺癌和其他癌症的治疗方法不断改进,相应的生存率也在提高。为了进一步发展和维持患者所需的良好护理,以帮助他们应对诊断、治疗和长期调整,需要在资源、培训和患者、全科医生和专科医生服务之间的创新沟通系统方面进行投资。

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引用本文的文献

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Men's perception of information and psychological distress in the diagnostic phase of prostate cancer: a comparative mixed methods study.男性在前列腺癌诊断阶段对信息的认知与心理困扰:一项比较性混合方法研究。
BMC Nurs. 2022 Sep 30;21(1):266. doi: 10.1186/s12912-022-01047-1.
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Supportive care needs of men with prostate cancer: A systematic review update.前列腺癌男性患者的支持性照护需求:系统评价更新。
Eur J Cancer Care (Engl). 2022 Mar;31(2):e13541. doi: 10.1111/ecc.13541. Epub 2022 Jan 17.
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Men's perception of information and descriptions of emotional strain in the diagnostic phase of prostate cancer-a qualitative individual interview study.
男性在前列腺癌诊断阶段对信息的感知和对情绪压力的描述——一项定性个体访谈研究。
Scand J Prim Health Care. 2021 Dec;39(4):476-485. doi: 10.1080/02813432.2021.2004734. Epub 2021 Nov 21.