Dialysis Unit. Hospital Universitario Infanta Cristina, Avenida 9 de Junio, 2, 28981 Parla, Spain.
Department of Nursing, Spanish Red Cross, Instituto de Investigación Sanitaria Gregorio Marañón (IiSGM), Universidad Autonoma de Madrid, 28009 Madrid, Spain.
Int J Environ Res Public Health. 2019 Aug 25;16(17):3086. doi: 10.3390/ijerph16173086.
Chronic kidney disease (CKD) has considerable effects on the quality of life of patients, impairing everyday activities and leading to lifestyle changes, as well as affecting body image and intimate relationships. Our aim was to describe the experience of female patients with CKD at an ambulatory dialysis unit regarding body changes and sexuality. A qualitative phenomenological study exploring how 18 female patients, treated at the dialysis unit of a Spanish hospital, perceived their sexuality and intimate relationships. Data were collected using in-depth interviews, researcher field notes, and patients' personal letters. A thematic analysis was performed. Four main themes arose from the data describing the experience of how CKD impacts body changes and sexuality: (a) Accepting body changes, (b) The catheter, the fistula, and body image, (c) Experiencing a different sexuality, and (d) The catheter, the fistula, and sexuality. Patients experienced changes in their body, perceiving it as being bloated or deformed, together with overall decline. The catheter and/or the fistula triggered changes in the way the women dress in an attempt to hide port sites. Women experience sexuality changes, affecting sexual desire and satisfaction. The presence of catheters was found to be the most cumbersome during sexual acts.
慢性肾脏病(CKD)对患者的生活质量有很大影响,影响日常活动并导致生活方式的改变,还会影响身体形象和亲密关系。我们的目的是描述在门诊透析单位的女性 CKD 患者对身体变化和性的体验。这是一项定性的现象学研究,探讨了 18 名在西班牙医院透析单位接受治疗的女性患者如何感知自己的性行为和亲密关系。使用深度访谈、研究人员的现场记录和患者的个人信件收集数据。进行了主题分析。从描述 CKD 如何影响身体变化和性行为的经验中得出了四个主要主题:(a)接受身体变化,(b)导管、瘘管和身体形象,(c)体验不同的性行为,以及(d)导管、瘘管和性行为。患者经历了身体的变化,认为自己的身体肿胀或变形,整体状况下降。导管和/或瘘管促使女性改变穿着方式,试图隐藏端口部位。女性经历了性行为的变化,影响了性欲望和满足感。发现导管在性行为中最不方便。