Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, London, UK.
J Appl Res Intellect Disabil. 2020 Mar;33(2):232-247. doi: 10.1111/jar.12657. Epub 2019 Sep 1.
Easy Read health information (ERHI) has the potential to promote engagement in health care for people with intellectual disabilities. This study examined how ERHI was actually employed by clinicians and received by patients.
Video recordings were made of 32 patients with intellectual disabilities attending a health check with primary care clinicians who had been given access to a range of ERHI, and 9 attending a health appointment with a specialist intellectual disability nurse. The recordings were analysed using conversation analysis.
Easy Read health information was visible in only 7 (22%) of the primary care health checks (though not always shared with the patients). Easy Read health information was used in sequences where clinicians offered unsolicited health advice and met with degrees of resistance from patients, though its potential for shared decision making was also evident.
Easy Read health information can aid patient understanding and decision making, but attention should be paid to the interactional practices accompanying their use.
简单易懂的健康信息（ERHI）有可能促进智障人士参与医疗保健。本研究考察了临床医生实际使用 ERHI 的方式以及患者对其的接受程度。
对 32 名智障患者进行了录像，他们在接受初级保健临床医生的健康检查时使用了 ERHI，其中 9 名患者与专门的智障护士进行了健康预约。使用会话分析对这些录音进行了分析。
在仅有的 7 次（22%）初级保健健康检查中（尽管并非总是与患者分享）可以看到简单易懂的健康信息。在临床医生提供未经请求的健康建议并遇到患者不同程度的抵制的情况下使用了简单易懂的健康信息，但也明显看出它在共同决策方面的潜力。
简单易懂的健康信息可以帮助患者理解和决策，但应注意伴随其使用的互动实践。
