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Supporting peer researchers: recommendations from our lived experience/expertise in community-based research in Canada.支持同行研究人员:来自我们在加拿大基于社区的研究中的生活经验/专业知识的建议。
Harm Reduct J. 2019 Sep 3;16(1):55. doi: 10.1186/s12954-019-0322-6.
2
Hiring, training, and supporting Peer Research Associates: Operationalizing community-based research principles within epidemiological studies by, with, and for women living with HIV.招聘、培训和支持同伴研究助理:通过女性参与的、为了女性的、由女性主导的社区为基础的研究原则,在艾滋病毒感染者流行病学研究中付诸实践。
Harm Reduct J. 2019 Jul 18;16(1):47. doi: 10.1186/s12954-019-0309-3.
3
Meaningful engagement of people living with HIV who use drugs: methodology for the design of a Peer Research Associate (PRA) hiring model.感染艾滋病毒的吸毒者的有意义参与:同伴研究助理(PRA)招聘模式设计方法。
Harm Reduct J. 2016 Oct 7;13(1):26. doi: 10.1186/s12954-016-0116-z.
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Development and Implementation of Peer Leader Training for Community-Based Participatory Sexual Health Research.基于社区参与性性健康研究的同伴领袖培训的开发与实施
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Achieving meaningful participation of people who use drugs and their peer organizations in a strategic research partnership.实现药物使用者及其同伴组织在战略研究伙伴关系中的有意义参与。
Harm Reduct J. 2019 Jun 10;16(1):37. doi: 10.1186/s12954-019-0306-6.
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Expanding conceptualizations of harm reduction: results from a qualitative community-based participatory research study with people who inject drugs.拓展减少伤害的概念:一项基于社区的定性参与式研究结果,研究对象为注射吸毒者。
Harm Reduct J. 2017 May 12;14(1):18. doi: 10.1186/s12954-017-0145-2.
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Int J Drug Policy. 2017 Mar;41:14-18. doi: 10.1016/j.drugpo.2016.11.008. Epub 2016 Dec 24.
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Building capacity in quantitative research and data storytelling to enhance knowledge translation: a training curriculum for peer researchers.提升知识转化能力的定量研究与数据讲解能力建设:面向同行研究者的培训课程
Res Involv Engagem. 2022 Dec 6;8(1):69. doi: 10.1186/s40900-022-00390-6.
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Management and Point-of-Care for Tobacco Dependence (PROMPT): a feasibility mixed methods community-based participatory action research project in Ottawa, Canada.烟草依赖的管理与即时护理(PROMPT):加拿大渥太华一项基于社区参与式行动研究的可行性混合方法项目。
BMJ Open. 2018 Jan 25;8(1):e018416. doi: 10.1136/bmjopen-2017-018416.
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"Hear(ing) New Voices": Peer Reflections from Community-Based Survey Development with Women Living with HIV.“聆听新声音”:来自与感染艾滋病毒女性开展社区调查的同行反思
Prog Community Health Partnersh. 2015 Winter;9(4):561-9. doi: 10.1353/cpr.2015.0079.

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Co-production in HIV research: a case study from the COVID-19 pandemic.艾滋病病毒研究中的共同生产:来自新冠疫情的一个案例研究
Res Involv Engagem. 2025 May 9;11(1):45. doi: 10.1186/s40900-025-00713-3.
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"This is an illness. No one is supposed to be treated badly": community-based stigma assessments in South Africa to inform tuberculosis stigma intervention design.“这是一种疾病。任何人都不应受到恶劣对待”:南非基于社区的耻辱感评估,为结核病耻辱感干预设计提供信息。
BMC Glob Public Health. 2024;2(1):41. doi: 10.1186/s44263-024-00070-5. Epub 2024 Jun 24.
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Digital storytelling online: a case report exploring virtual design, implementation opportunities and challenges.在线数字叙事:一项探索虚拟设计、实施机会与挑战的病例报告。
Res Involv Engagem. 2024 Apr 9;10(1):37. doi: 10.1186/s40900-024-00570-6.
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'I felt part of the solution'. A qualitative study about the interface between lived experience advocates, professionals and organisations in the field of persistent pain.“我感觉自己是解决方案的一部分”。一项关于慢性疼痛领域中生活经验倡导者、专业人员和组织之间界面的定性研究。
Br J Pain. 2024 Apr;18(2):120-127. doi: 10.1177/20494637231208095. Epub 2023 Oct 18.
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'Building bridges': reflections and recommendations for co-producing health research.“搭建桥梁”:关于共同开展健康研究的思考与建议
Res Involv Engagem. 2023 Dec 6;9(1):113. doi: 10.1186/s40900-023-00528-0.
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HIV in MOTION: a community of practice on physical rehabilitation for and by people living with HIV and their allies.HIV动态:一个由HIV感染者及其盟友参与并为其开展身体康复的实践社区。
Front Rehabil Sci. 2023 Oct 6;4:1154692. doi: 10.3389/fresc.2023.1154692. eCollection 2023.
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'I Will Fight for People to Not Have the Experience I've Had': A Thematic Analysis of the Experiences and Perspectives of Chronic Pain Lived Experience Advocates.“我将为人们争取避免我所经历的体验而奋斗”:对慢性疼痛患者生活体验倡导者的经历和观点的主题分析。
Qual Health Res. 2023 Sep;33(11):995-1004. doi: 10.1177/10497323231188639. Epub 2023 Aug 23.
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"Because of COVID…": The impacts of COVID-19 on First Nation people accessing the HIV cascade of care in Manitoba, Canada.“因为 COVID…": COVID-19 对加拿大马尼托巴省第一民族人群获取艾滋病毒护理服务的影响。
PLoS One. 2023 Aug 2;18(8):e0288984. doi: 10.1371/journal.pone.0288984. eCollection 2023.
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Community-Engaged Research Ethics Training (CERET): developing accessible and relevant research ethics training for community-based participatory research with people with lived and living experience using illicit drugs and harm reduction workers.社区参与式研究伦理培训(CERET):为使用非法药物和减少伤害工作者的具有生活和生存经验的人开展基于社区的参与式研究开发可及和相关的研究伦理培训。
Harm Reduct J. 2023 Jul 6;20(1):86. doi: 10.1186/s12954-023-00818-6.
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Lessons learned from a virtual Community-Based Participatory Research project: prioritizing needs of people who have diabetes and experiences of homelessness to co-design a participatory action project.从一个基于社区的虚拟参与式研究项目中吸取的经验教训:优先考虑糖尿病患者和无家可归者的需求,共同设计一个参与式行动项目。
Res Involv Engagem. 2023 Jul 4;9(1):46. doi: 10.1186/s40900-023-00456-z.

本文引用的文献

1
Harm reduction principles for healthcare settings.医疗环境中的减少伤害原则。
Harm Reduct J. 2017 Oct 24;14(1):70. doi: 10.1186/s12954-017-0196-4.
2
"We're giving you something so we get something in return": Perspectives on research participation and compensation among people living with HIV who use drugs.“我们给你一些东西,所以我们也能得到一些回报”:对吸毒的艾滋病毒感染者参与研究及补偿的看法。
Int J Drug Policy. 2017 Jan;39:92-98. doi: 10.1016/j.drugpo.2016.09.004. Epub 2016 Oct 22.
3
The development and application of a public health skills assessment tool for use in primary care organisations.一种用于基层医疗组织的公共卫生技能评估工具的开发与应用。
Public Health. 2003 May;117(3):165-72. doi: 10.1016/S0033-3506(03)00079-9.

支持同行研究人员:来自我们在加拿大基于社区的研究中的生活经验/专业知识的建议。

Supporting peer researchers: recommendations from our lived experience/expertise in community-based research in Canada.

机构信息

MAP Centre for Urban Health Solutions, St Michael's Hospital, Toronto, ON, Canada.

出版信息

Harm Reduct J. 2019 Sep 3;16(1):55. doi: 10.1186/s12954-019-0322-6.

DOI:10.1186/s12954-019-0322-6
PMID:31481067
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6724244/
Abstract

Community-based research in HIV in Canada is a complex undertaking. Including peer researchers living with HIV meaningfully is intricate and costly. However, this inclusion guarantees results that translate to community action, policy-making, and public awareness. Including HIV+ peer researchers expedites the path from research to intervention. However, we must constantly review our support in light of three implicit tasks performed by peer researchers: constant disclosure, emotional labor, and advocating for meaningful participation. Our team offers four pillars of support to reduce harm and strengthen the self-determination, confidence, advocacy, and impact for HIV+ peer researchers. The provision of emotional, instrumental, educational, and cultural/spiritual support might seldom be standardized within a study, but to successfully engage in community-based research, study teams must articulate what support can be offered in each area.

摘要

在加拿大,基于社区的 HIV 研究是一项复杂的任务。有意义地纳入感染 HIV 的同行研究人员是复杂且昂贵的。然而,这种纳入保证了研究结果能够转化为社区行动、政策制定和公众意识。纳入 HIV+同行研究人员可以加速从研究到干预的过程。然而,我们必须根据同行研究人员执行的三项隐含任务不断审查我们的支持:持续披露、情感劳动和倡导有意义的参与。我们的团队提供了四个支持支柱,以减少伤害,增强 HIV+同行研究人员的自我决定、信心、倡导和影响力。情感、工具、教育以及文化/精神支持的提供在研究中很少标准化,但为了成功开展基于社区的研究,研究团队必须明确在每个领域可以提供哪些支持。