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从一个基于社区的虚拟参与式研究项目中吸取的经验教训:优先考虑糖尿病患者和无家可归者的需求,共同设计一个参与式行动项目。

Lessons learned from a virtual Community-Based Participatory Research project: prioritizing needs of people who have diabetes and experiences of homelessness to co-design a participatory action project.

作者信息

Tariq Saania, Grewal Eshleen K, Booth Roland, Nat B, Ka-Caleni Thami, Larsen Matt, Lawson Justin, Whaley Anna, Walsh Christine A, Campbell David J T

机构信息

Department of Medicine, Cumming School of Medicine, University of Calgary, 3E33 CWPH Building, 3280 Hospital Drive NW, Calgary, AB, T2N 4Z6, Canada.

Calgary Diabetes Advocacy Committee, Calgary, AB, Canada.

出版信息

Res Involv Engagem. 2023 Jul 4;9(1):46. doi: 10.1186/s40900-023-00456-z.

DOI:10.1186/s40900-023-00456-z
PMID:37403184
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10320889/
Abstract

In Community-Based Participatory Research (CBPR), people with shared lived experiences (co-researchers) identify priority needs and work collaboratively to co-design an action-oriented research advocacy project. For this to occur, academic researchers must build mutually respectful partnerships with co-researchers by establishing trust. In the context of the COVID-19 pandemic, our objective was to virtually assemble a group of co-researchers (people with diverse but relevant experiences of homelessness and diabetes) and academic researchers who engaged in the CBPR process to identify a project that would address the difficulties of diabetes management while experiencing homelessness. Co-researchers were recruited to the committee from community homeless-serving organizations. Six co-researchers, one peer researcher and three academic researchers from Calgary, Alberta met virtually for bi-weekly committee meetings, from June 2021 to May 2022 to explore barriers to diabetes management and to complete a priority-setting exercise to determine the focus of our collective project. After reflecting on our virtual CBPR experience we present lessons learned related to: i) technical challenges and logistical considerations, ii) meeting virtually and building rapport, iii) driving engagement, and iv) challenges of transitioning from virtual to in-person meeting format. Overall, the process of conducting a CBPR project virtually to engage a group of co-researchers during a pandemic presents its challenges. However, a virtual CBPR project is feasible and can lead to meaningful experiences that benefit all group members, both from the community and academia.

摘要

在基于社区的参与式研究(CBPR)中,有共同生活经历的人(共同研究者)确定优先需求,并共同努力共同设计一个以行动为导向的研究倡导项目。要实现这一点,学术研究人员必须通过建立信任与共同研究者建立相互尊重的伙伴关系。在新冠疫情背景下,我们的目标是虚拟召集一群共同研究者(有不同但相关的无家可归和糖尿病经历的人)和参与CBPR过程的学术研究人员,以确定一个项目,该项目将解决在无家可归状态下管理糖尿病的困难。共同研究者从社区无家可归者服务组织招募到委员会。来自艾伯塔省卡尔加里的六名共同研究者、一名同行研究者和三名学术研究人员在2021年6月至2022年5月期间,以虚拟方式参加每两周一次的委员会会议,探讨糖尿病管理的障碍,并完成一次确定优先事项的活动,以确定我们集体项目的重点。在反思我们的虚拟CBPR经历后,我们介绍了与以下方面相关的经验教训:i)技术挑战和后勤考虑,ii)虚拟会议和建立融洽关系,iii)推动参与度,以及iv)从虚拟会议形式过渡到面对面会议形式的挑战。总体而言,在疫情期间通过虚拟方式开展CBPR项目以吸引一群共同研究者参与的过程存在挑战。然而,一个虚拟CBPR项目是可行的,并且可以带来使社区和学术界的所有小组成员都受益的有意义的经历。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/5195cc82ce18/40900_2023_456_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/bdc6c57036ed/40900_2023_456_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/e7e48c551ae9/40900_2023_456_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/5195cc82ce18/40900_2023_456_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/bdc6c57036ed/40900_2023_456_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/e7e48c551ae9/40900_2023_456_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9218/10320889/5195cc82ce18/40900_2023_456_Fig3_HTML.jpg

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