Ibáñez-Carrasco Francisco, Jiancaro Tizneem, Torres Brittany, McDuff Kiera, Da Silva George, Lindsay Joanne, Price Colleen, Islam Shaz, Bradford Glen, O'Brien Kelly K
Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.
Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Front Rehabil Sci. 2023 Oct 6;4:1154692. doi: 10.3389/fresc.2023.1154692. eCollection 2023.
This paper describes the design, implementation, and evaluation of a community of practice (CoP), HIV in MOTION (HIM), to advance physical activity rehabilitation interventions with adults living with HIV, clinicians, researchers, and representatives from community-based organizations. We attracted a diverse audience of geographically dispersed people living with HIV, clinicians, exercise personnel, and trainees to eight HIM community of practice events that featured the clinical, research, and lived experience of people living with HIV. HIV in MOTION had (a) a domain related to physical rehabilitation, exercise, and social participation for people living with HIV; (b) a community of diverse individuals; and (c) a practice, that is, a series of sustained interactions online and offline, synchronous, and asynchronous. Our team included six diverse people living with HIV, two coordinators, and three academic researchers who planned, prepared, implemented, and evaluated each online session. To evaluate the HIV in MOTION CoP, we employed an evaluation framework composed of five criteria: Goals and Scope, Context and Structure, Process and Activities, Outcomes, and Impact. We collected quantitative and qualitative evaluative data using online evaluation, audiovisual archiving, and participant observations during the debriefing with all members of our team.
We widened the Goals and Scope of the HIV in MOTION CoP to include the HIV narrative of lived experiences, including autopathography, and participant storytelling. In matters of Context and Structure, we received explicit satisfaction with our governance and leadership. Also, being flexible to fit online formats was a productive strategy that made the HIV in MOTION CoP sessions agile and amenable to audiovisual archiving. Our indicators of success in Process, Activities, and Outcomes included participant retention online, elicited verbal interventions and comments in the chat room, and a rate of three repeat visits online. The indicators of success of Impact were the presence of voluntary and unscripted autopathography, the patient storytelling and how it reportedly caused changes in the participants, and the "legitimate peripheral participation" of emerging research and clinical students. In conclusion, we recommend our form of CoP for mixing the knowledge of diverse persons in this area. However, we recommend considering budget and burnout as serious challenges to sustainability.
本文描述了一个实践社区（CoP）——“HIV在行动”（HIM）的设计、实施和评估，旨在推进针对感染HIV的成年人、临床医生、研究人员以及社区组织代表的体育活动康复干预。我们吸引了来自不同地区、地理上分散的感染HIV的人群、临床医生、运动人员和学员参加了八次“HIV在行动”实践社区活动，这些活动展示了感染HIV者的临床、研究和生活经历。“HIV在行动”有（a）一个与感染HIV者的身体康复、运动和社会参与相关的领域；（b）一个由不同个体组成的社区；以及（c）一种实践，即一系列线上和线下、同步和异步的持续互动。我们的团队包括六名不同的感染HIV者、两名协调员和三名学术研究人员，他们负责策划、准备、实施和评估每次线上会议。为了评估“HIV在行动”实践社区，我们采用了一个由五个标准组成的评估框架：目标与范围、背景与结构、过程与活动、成果和影响。我们通过线上评估、视听存档以及在与团队所有成员的汇报会议期间进行的参与者观察，收集了定量和定性的评估数据。
我们扩大了“HIV在行动”实践社区的目标与范围，将包括自我叙事法和参与者讲故事在内的HIV生活经历叙事纳入其中。在背景与结构方面，我们在治理和领导方面得到了明确的满意度。此外，灵活适应线上形式是一种有效的策略，使“HIV在行动”实践社区的会议灵活且适合视听存档。我们在过程、活动和成果方面的成功指标包括参与者在线留存率、在聊天室引发的口头干预和评论，以及在线重复访问率达到三次。影响方面的成功指标包括自愿且无脚本的自我叙事法的出现、患者讲故事以及据报道它如何引起参与者的改变，以及新兴研究和临床学生的“合法边缘参与”。总之，我们推荐我们这种形式的实践社区，用于整合该领域不同人员的知识。然而，我们建议将预算和倦怠视为可持续性的严峻挑战。
