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点对点连接:对一款专为年轻癌症患者设计的社交支持应用的看法。

Peer-to-peer connections: Perceptions of a social support app designed for young adults with cancer.

机构信息

School of Media and Journalism, University of North Carolina, Chapel Hill, North Carolina.

Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, North Carolina.

出版信息

Psychooncology. 2020 Jan;29(1):173-181. doi: 10.1002/pon.5220. Epub 2019 Sep 16.

Abstract

OBJECTIVE

Social support is a critical, yet frequently unmet, need among young adults (YAs) with cancer. YAs desire age-appropriate resources to connect with peers. Peer-to-peer mobile apps are promising interventions to provide social support. Peer-to-peer apps will be more effective if development incorporates users' input for whether app designs (look and function) afford meaningful connections.

METHODS

We interviewed 22 YAs to assess perceptions of a peer-to-peer app at a YA cancer convention in April 2017.

RESULTS

Participants were an average age of 29, mostly female (77%), white (73%), and well educated (68% with 4-year college degree or higher). Most participants expressed interested in using an app to connect with YAs, but preferences varied by prevalence or rarity of one's cancer diagnosis. YAs shared trade-offs for profile anonymity versus profiles with more personal information, requests for filter options to connect for varying support needs, and desires for tailored messaging and chat room features (eg, topic-specific and search capabilities).

CONCLUSION

Findings demonstrate the promise of apps to fulfill YA cancer survivors' unmet peer support needs and provide guidance for app optimization.

CLINICAL IMPLICATIONS

Peer-to-peer support apps should be designed so users can control their identity and customize features for meaningful connections.

摘要

目的

社会支持是癌症青年患者(YAs)的一个重要但经常未得到满足的需求。YAs 渴望获得与同龄人联系的适龄资源。同伴对同伴的移动应用程序是提供社会支持的很有前途的干预措施。如果开发过程中包含了用户对应用程序设计(外观和功能)是否提供有意义的联系的意见,同伴对同伴的应用程序将更加有效。

方法

我们在 2017 年 4 月的 YA 癌症大会上采访了 22 名 YAs,以评估对同伴对同伴应用程序的看法。

结果

参与者的平均年龄为 29 岁,大多数为女性(77%),白人(73%),受过良好教育(68%有 4 年制大学学位或更高)。大多数参与者表示有兴趣使用应用程序与 YAs 联系,但对个人癌症诊断的普遍性或稀有性的偏好因人而异。YAs 分享了个人资料匿名与更多个人信息的权衡取舍,请求连接不同支持需求的过滤选项,以及对定制消息和聊天室功能(例如,特定主题和搜索功能)的渴望。

结论

研究结果表明,应用程序有希望满足 YAs 癌症幸存者未满足的同伴支持需求,并为应用程序优化提供指导。

临床意义

同伴支持应用程序应设计为用户可以控制自己的身份并为有意义的联系自定义功能。

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