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本文引用的文献

1
Factors associated with anxiety in family caregivers of children with chronic diseases.慢性病患儿家庭照顾者焦虑的相关因素。
Biopsychosoc Med. 2018 Dec 12;12:20. doi: 10.1186/s13030-018-0139-7. eCollection 2018.
2
Enlightening chronic obstructive pulmonary disease through patients' and caregivers' narratives.通过患者及其照顾者的叙述来解读慢性阻塞性肺疾病。
Int J Chron Obstruct Pulmon Dis. 2018 Oct 5;13:3095-3105. doi: 10.2147/COPD.S172214. eCollection 2018.
3
Narrative medicine educational project to improve the care of patients with chronic obstructive pulmonary disease.叙事医学教育项目以改善慢性阻塞性肺疾病患者的护理。
ERJ Open Res. 2018 May 4;4(2). doi: 10.1183/23120541.00155-2017. eCollection 2018 Apr.
4
Narrative medicine to improve the management and quality of life of patients with COPD: the first experience applying parallel chart in Italy.叙事医学改善慢性阻塞性肺疾病患者的管理与生活质量:意大利首次应用平行病历的经验
Int J Chron Obstruct Pulmon Dis. 2018 Jan 11;13:287-297. doi: 10.2147/COPD.S148685. eCollection 2018.
5
Patient-reported outcomes in asthma clinical trials.哮喘临床试验中的患者报告结局。
Curr Opin Pulm Med. 2018 Jan;24(1):70-77. doi: 10.1097/MCP.0000000000000440.
6
Asthma Exacerbations: Pathogenesis, Prevention, and Treatment.哮喘恶化:发病机制、预防和治疗。
J Allergy Clin Immunol Pract. 2017 Jul-Aug;5(4):918-927. doi: 10.1016/j.jaip.2017.05.001.
7
In patients with severe uncontrolled asthma, does knowledge of adherence and inhaler technique using electronic monitoring improve clinical decision making? A protocol for a randomised controlled trial.在重度未控制哮喘患者中,使用电子监测了解依从性和吸入器技术是否能改善临床决策?一项随机对照试验方案。
BMJ Open. 2017 Jun 15;7(6):e015367. doi: 10.1136/bmjopen-2016-015367.
8
A patient advocate to facilitate access and improve communication, care, and outcomes in adults with moderate or severe asthma: Rationale, design, and methods of a randomized controlled trial.一名患者倡导者以促进中度或重度哮喘成人患者的就医机会并改善沟通、护理及治疗结果:一项随机对照试验的基本原理、设计与方法
Contemp Clin Trials. 2017 May;56:34-45. doi: 10.1016/j.cct.2017.03.004. Epub 2017 Mar 14.
9
Building trust and rapport early in the new doctor-patient relationship: a longitudinal qualitative study.在新型医患关系中尽早建立信任和融洽关系:一项纵向定性研究。
BMC Med Educ. 2017 Feb 2;17(1):32. doi: 10.1186/s12909-017-0868-5.
10
How medicine has exploited rationality at the expense of humanity: an essay by Iona Heath.医学如何以牺牲人性为代价来利用理性:艾奥娜·希思的一篇文章
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运用叙事医学确定重度哮喘中有效医患关系的关键因素。

Use of narrative medicine to identify key factors for effective doctor-patient relationships in severe asthma.

作者信息

Cappuccio Antonietta, Napolitano Silvia, Menzella Francesco, Pellegrini Guido, Policreti Alessandro, Pelaia Girolamo, Porpiglia Pasquale Alberto, Marini Maria Giulia

机构信息

Fondazione ISTUD, Milan, Italy.

Department of Medical Specialties Pneumology Unit, Arcispedale Santa Maria Nuova- IRCCS, Azienda USL di Reggio Emilia, Reggio Emilia, Italy.

出版信息

Multidiscip Respir Med. 2019 Sep 2;14:26. doi: 10.1186/s40248-019-0190-7. eCollection 2019.

DOI:10.1186/s40248-019-0190-7
PMID:31497295
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6717986/
Abstract

BACKGROUND

In this project the authors use a narrative medicine (NM) approach to assess the promotion of trust in the relationship between physicians and their asthma patients.

METHODS

Following a NM educational course for physicians, a research was carried out in which at least 5 written narratives (parallel charts) for each participating physician were collected and qualitatively analysed according to Bury's classification and the Grounded Theory.

RESULTS

The results of this study were of speculative and clinical interest. In particular, 66 participants wrote 314 narratives (246 on adult and 68 on paediatric patients). As a result of applying the NM approach, when the relationships remained problematic, many physicians wrote with a moral style about their adult (67%), and paediatric patients (33%) - especially in cases of asthmatic children's or adolescents' overprotective or absent families (40%) -. On the contrary, physicians who were able to listen to their patients with empathy (35%) made more shared decisions with patients, even with those they initially had a bad relationship. The used words of welcome, interest and acceptance were promoting patients' trust that lead to restoring their activities in 45% of cases, according to physicians self-reporting.

CONCLUSIONS

These approaches of NM are useful in daily clinical practice, with the goal of improving the quality of life (QOL) of patients with severe asthma, even in cases in which the doctor-patient relationship isn't initially good.

摘要

背景

在本项目中,作者采用叙事医学(NM)方法来评估医患关系中信任的促进情况。

方法

在为医生开展叙事医学教育课程后,进行了一项研究,收集了每位参与医生至少5篇书面叙事(平行病历),并根据伯里的分类法和扎根理论进行定性分析。

结果

本研究结果具有推测性和临床意义。具体而言,66名参与者撰写了314篇叙事(246篇关于成年患者,68篇关于儿科患者)。应用叙事医学方法的结果显示,当医患关系仍然存在问题时,许多医生以道德风格描述他们的成年患者(67%)和儿科患者(33%)——尤其是在哮喘儿童或青少年的家庭过度保护或疏于照顾的情况下(40%)。相反,能够感同身受地倾听患者的医生(35%)与患者做出了更多共同决策,即使是与那些他们最初关系不佳的患者。根据医生的自我报告,使用欢迎、感兴趣和接纳的言辞促进了患者的信任,在45%的案例中促使患者恢复了活动。

结论

这些叙事医学方法在日常临床实践中很有用,目标是改善重度哮喘患者的生活质量(QOL),即使在医患关系最初不佳的情况下也是如此。