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卵巢癌女性的性功能、生活质量及经历:一项混合方法研究

Sexual Function, Quality of Life, and Experiences of Women with Ovarian Cancer: A Mixed-Methods Study.

作者信息

Fischer Olivia J, Marguerie Monique, Brotto Lori A

机构信息

Department of Counselling Psychology, University of British Columbia, Vancouver, British Columbia, Canada.

Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.

出版信息

Sex Med. 2019 Dec;7(4):530-539. doi: 10.1016/j.esxm.2019.07.005. Epub 2019 Sep 7.

Abstract

INTRODUCTION

Ovarian cancer impacts approximately 1 in 75 women. Sexual health is receiving increasing attention as a critical aspect of gynecologic cancer treatment and a component of quality of life. Therefore, investigating how women with ovarian cancer experience and express sexuality is an important area of inquiry.

AIMS

To evaluate how women with ovarian cancer experience and express sexuality, a major determinant of quality of life, in the context of their illness.

METHODS

In a mixed-methods approach, 6 validated self-report questionnaires (n = 64) and an in-depth focus group (n = 3) were used to gather data.

RESULTS

The quantitative phase of the study showed that women with ovarian cancer have a poorer quality of life and higher rates of sexual dysfunction and sexual distress compared with published norms from the general population. They also have lower levels of relationship satisfaction and increased rates of depression. The qualitative phase of the study revealed 6 themes: (i) changes to relationship satisfaction; (ii) sexual difficulties; (iii) challenges with body image; (iv) gaps in communication with healthcare providers; (v) feelings of guilt, grief, resentment, anxiety, and fear; and (vi) strategies used for coping.

CONCLUSIONS

Ovarian cancer impacts women's lives beyond mere survival, including their sexual function and quality of life. Healthcare providers are urged to prepare women with ovarian cancer for these challenges and offer information and resources to help improve their quality of life and sexuality. Fischer OJ, Marguerie M, Brotto LA. Sexual Function, Quality of Life, and Experiences of Women with Ovarian Cancer: A Mixed-Methods Study. Sex Med 2019;7:530-539.

摘要

引言

卵巢癌影响着约每75名女性中的1人。性健康作为妇科癌症治疗的一个关键方面以及生活质量的一个组成部分,正受到越来越多的关注。因此,研究卵巢癌女性如何体验和表达性是一个重要的研究领域。

目的

在疾病背景下,评估卵巢癌女性如何体验和表达性,这是生活质量的一个主要决定因素。

方法

采用混合方法,使用6份经过验证的自我报告问卷(n = 64)和一个深入焦点小组(n = 3)来收集数据。

结果

研究的定量阶段表明,与一般人群公布的标准相比,卵巢癌女性的生活质量较差,性功能障碍和性困扰发生率较高。她们的关系满意度水平也较低,抑郁症发生率增加。研究的定性阶段揭示了6个主题:(i)关系满意度的变化;(ii)性困难;(iii)身体形象挑战;(iv)与医疗保健提供者沟通的差距;(v)内疚、悲伤、怨恨、焦虑和恐惧的感觉;(vi)应对策略。

结论

卵巢癌对女性生活影响的不仅仅是生存,还包括她们的性功能和生活质量。敦促医疗保健提供者让卵巢癌女性为这些挑战做好准备,并提供信息和资源以帮助改善她们的生活质量和性状况。菲舍尔OJ、玛盖里M、布罗托LA。卵巢癌女性的性功能、生活质量及经历:一项混合方法研究。性医学2019;7:530 - 539。

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