Youth Cancer Service SA/NT, Royal Adelaide Hospital, Adelaide, South Australia, Australia.
Department of Haematology and Oncology, Women's and Children's Hospital, North Adelaide, South Australia, Australia.
Pediatr Blood Cancer. 2019 Dec;66(12):e27991. doi: 10.1002/pbc.27991. Epub 2019 Sep 16.
This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient- and family-focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.
本综述借鉴了来自澳大利亚、美国和英国的青少年和年轻成人(AYA)癌症临床医生的经验,总结了这些国家实施的护理模式的共同方面。这些模式的基本原则包括以了解正常 AYA 发育为基础的以患者和家庭为中心的护理,通过增强现有的成人或儿科癌症服务来满足 AYA 的需求,以及促进儿科和成人肿瘤学家之间的合作。AYA 癌症护理的共同要素包括建立一个整合医疗和心理社会护理的 AYA 多学科团队,努力集中复杂的护理,为所有 AYA 提供获得服务的机会和平等性,促进临床试验,并帮助促进向健康的生存过渡。描述了几种组织方法,指出当地项目的发展取决于资源、基础设施以及对该地区未满足需求的评估。国家网络的发展为共享学习和评估方法提供了机会。