Modena HIV Metabolic Clinic, University of Modena and Reggio Emilia. Modena, Italy.
Department of Internal Medicine and Infectious Diseases, University Medical Center Utrecht, Utrecht University. Utrecht, The Netherlands.
AIDS Rev. 2019;21(3):135-142. doi: 10.24875/AIDSRev.19000088.
Since HIV has evolved from being a fatal illness to a chronic condition, this brings new challenges relating to long-term health, as increasing numbers of people living with HIV (PLHIV) navigate their lives beyond viral suppression. This review presents the challenges facing patients and health-care providers managing HIV in Europe today. We highlight the challenges that the evolving landscape in HIV brings, including managing an aging and more diverse population of PLHIV; this requires a shift from managing disease to managing health and may best be achieved by multidisciplinary teams in the long term. We introduce the concept of "health goals for me:" an individualized approach to the management of HIV, and use this as the basis for a proposed framework for assessing health-related quality of life for PLHIV. Our framework comprises a continuous cycle of "ask and measure," "feedback and discussion," and "intervention," based on collaboration between the health-care professional and patient. For improved long-term management of PLHIV, we consider that this framework should become an intrinsic part of HIV care in the future and that the "health goals for me" concept be used as a tool to facilitate healthy living for PLHIV beyond viral suppression.
由于 HIV 已经从一种致命疾病演变为一种慢性疾病,这给与长期健康相关的带来了新的挑战,因为越来越多的 HIV 感染者(PLHIV)在病毒抑制之外规划自己的生活。这篇综述介绍了当今在欧洲管理 HIV 面临的挑战。我们强调了 HIV 不断发展的领域带来的挑战,包括管理老龄化和更多样化的 PLHIV 人群;这需要从管理疾病转变为管理健康,并且长期来看,多学科团队可能是最佳的实现方式。我们引入了“我自己的健康目标”的概念:一种管理 HIV 的个性化方法,并以此为基础提出了一个评估 PLHIV 与健康相关的生活质量的框架。我们的框架包括“询问和测量”、“反馈和讨论”以及“干预”的连续循环,基于医疗保健专业人员和患者之间的合作。为了更好地管理 PLHIV 的长期健康,我们认为该框架应成为未来 HIV 护理的内在组成部分,并将“我自己的健康目标”概念用作工具,以促进 PLHIV 在病毒抑制之外的健康生活。