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青少年对 BlackBerry 项目中参与者权利的理解,一项纵向门诊评估研究。

Older Adolescents' Understanding of Participant Rights in the BlackBerry Project, a Longitudinal Ambulatory Assessment Study.

机构信息

Utah State University.

University of Nevada.

出版信息

J Res Adolesc. 2019 Sep;29(3):662-674. doi: 10.1111/jora.12461.

Abstract

For a long-term, longitudinal study that used BlackBerry smartphones for passive ambulatory assessment among older adolescents, this study focused on three areas of ethical concern: (1) adolescents' competence to give assent; (2) understanding of confidentiality, the protection of information, and project goals; and (3) awareness of procedures and benefits, and comfort with the research design. One hundred and seventy-eight participants were 17 and 18 years old (84 girls). Results suggested that participants freely gave consent and understood most, but not all of the informed consent information. Participants reported a high level of satisfaction. Participants showed less understanding of when their confidentiality would be broken and how data would be protected.

摘要

对于一项使用 BlackBerry 智能手机对青少年进行被动动态评估的长期纵向研究,本研究关注三个伦理关注领域:(1)青少年同意的能力;(2)对保密性、信息保护和项目目标的理解;以及(3)对程序和利益的认识以及对研究设计的舒适度。178 名参与者年龄在 17 至 18 岁之间(84 名女孩)。结果表明,参与者自愿同意并理解了大部分但并非全部知情同意信息。参与者报告了高度的满意度。参与者对何时会泄露其机密性以及如何保护数据的理解较少。

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