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儿童对参与研究的认知:审视创伤暴露与痛苦

Children's Perception of Research Participation: Examining Trauma Exposure and Distress.

作者信息

Chu Ann T, Deprince Anne P, Weinzierl Kristin M

机构信息

University of Denver.

出版信息

J Empir Res Hum Res Ethics. 2008 Mar;3(1):49-58. doi: 10.1525/jer.2008.3.1.49.

Abstract

USING THE REACTIONS TO RESEARCH Participation Questionnaire for Children (RRPQ-C), this study examined perceptions of research participation among 181 school-aged children with and without trauma histories. As part of two larger studies, children completed non-trauma related tasks to assess emotion understanding and cognitive ability. Parents (and not children) reported on children's interpersonal (e.g., sexual abuse, physical abuse, witnessing domestic violence, witnessing community violence) and non-interpersonal (e.g., motor vehicle accidents, medical traumas, natural disasters) trauma exposure. Children's perceptions of costs and benefits of research participation and understanding of informed consent did not vary as a function of trauma exposure. The number of traumatic events experienced was unrelated to children's perceptions. Furthermore, children across trauma-exposure groups generally reported a positive cost-benefit ratio, and understanding of the consent information. Implications of these data are discussed.

摘要

本研究使用儿童研究参与调查问卷(RRPQ-C),调查了181名有或没有创伤史的学龄儿童对研究参与的看法。作为两项更大规模研究的一部分,儿童完成了与创伤无关的任务,以评估情绪理解和认知能力。由父母(而非儿童)报告儿童的人际创伤暴露情况(如性虐待、身体虐待、目睹家庭暴力、目睹社区暴力)和非人际创伤暴露情况(如机动车事故、医疗创伤、自然灾害)。儿童对研究参与的成本和收益的看法以及对知情同意的理解并不会因创伤暴露情况而有所不同。经历的创伤事件数量与儿童的看法无关。此外,不同创伤暴露组的儿童普遍报告了积极的成本效益比以及对同意信息的理解。本文讨论了这些数据的意义。

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