Research department, The Social Insurance Institution of Finland, FI-00250 Helsinki, Finland.
Insurance Medicine Unit, The Social Insurance Institution, FI-40101 Jyväskylä, Finland.
Int J Environ Res Public Health. 2019 Sep 30;16(19):3682. doi: 10.3390/ijerph16193682.
Young people with visual impairment (YPWVI) face several challenges in their everyday lives. However, little is known about interventions that focus on promoting their participation that contributes to health and well-being and is considered the most relevant outcome in rehabilitation.
This study investigated the clinical outcomes and acceptability of a new one-year, multiform, group-based rehabilitation program for YPWVI. The aim of the pilot program was to support them becoming more independent and to promote their participation. Rehabilitation consisted of group-meetings in an institutional setting, online group meetings, individually tailored one-on-one guidance, individual online discussions and parents' group meetings. Fifteen young persons with visual impairment were recruited and 14 completed the intervention, six of whom were blind or had severe visual impairment and eight had mild visual loss.
The study utilized a mixed methods triangulation design. Clinical outcome measures were goal attainment scaling (GAS) and occupational performance (COPM) completed with qualitative interview data. Focus group interviews with participants and parents were used to evaluate the acceptability of the program.
GAS-rated personal goals were widely achieved and the scores of both performance and satisfaction scales of COPM improved. Overall, the rehabilitation program proved to be acceptable. Group-based rehabilitation was deemed very important and it enabled peer support. However, two-day periods of inpatient rehabilitation, proved to be too short, whereas five-day periods were considered to disturb schoolwork.
Group-based multi-form rehabilitation for YPWVI can have a positive impact on activity and participation of the participants. The program can support independence and the achievement of rehabilitation goals. The group format was applauded for providing social support and company. The program required some structural modifications.
年轻人视力障碍(YPWVI)在日常生活中面临着一些挑战。然而,人们对关注促进他们参与的干预措施知之甚少,这些干预措施有助于健康和幸福,被认为是康复中最相关的结果。
本研究调查了针对 YPWVI 的为期一年、多形式、团体为基础的康复计划的临床结果和可接受性。该试点计划的目的是支持他们变得更加独立,并促进他们的参与。康复包括在机构环境中进行小组会议、在线小组会议、量身定制的一对一指导、个人在线讨论和家长小组会议。招募了 15 名视力障碍的年轻人,其中 14 名完成了干预,其中 6 名是盲人或严重视力障碍,8 名是轻度视力损失。
本研究采用混合方法三角测量设计。临床结果测量是目标实现量表(GAS)和职业表现(COPM),同时结合定性访谈数据。对参与者和家长进行焦点小组访谈,以评估该计划的可接受性。
GAS 评定的个人目标得到了广泛实现,COPM 的表现和满意度评分都有所提高。总的来说,康复计划被证明是可以接受的。团体为基础的康复被认为非常重要,它能够提供同伴支持。然而,为期两天的住院康复被证明时间太短,而为期五天的康复则被认为会干扰学业。
针对 YPWVI 的团体多形式康复可以对参与者的活动和参与产生积极影响。该计划可以支持独立性和康复目标的实现。团体形式受到欢迎,因为它提供了社会支持和陪伴。该计划需要进行一些结构上的修改。