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慢性鼻-鼻窦炎和颅底疾病患者报告结局测量的可读性。

Readability of patient-reported outcome measures for chronic rhinosinusitis and skull base diseases.

机构信息

University of North Carolina School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, U.S.A.

Department of Otolaryngology/Head and Neck Surgery, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, North Carolina, U.S.A.

出版信息

Laryngoscope. 2020 Oct;130(10):2305-2310. doi: 10.1002/lary.28330. Epub 2019 Oct 11.

DOI:10.1002/lary.28330
PMID:31603564
Abstract

OBJECTIVE

Outcome measures in healthcare that presume a higher level of patient health and overall literacy may inadequately estimate the disease experiences of less-educated patients and further disadvantage them. Patient-Reported Outcome Measures (PROMs) are widely used communication tools for clinical practice and are often used to evaluate and guide management for chronic rhinosinusitis (CRS) and skull base diseases. However, their readability and subsequent incomprehensibility for patients have not been assessed. The aim of this study is to evaluate the readability of commonly used PROMs for these conditions and whether they meet recommended readability levels.

METHODS

Three readability measures, Gunning Fog, Simple Measure of Gobbledygook (SMOG), and FORCAST were used in the evaluation of commonly used PROMs for CRS and skull base disease. PROMs with sixth-grade readability level or lower were considered to meet health literacy experts' recommendations.

RESULTS

A total of 11 PROMs were reviewed (8 CRS, 3 skull base). Gunning Fog consistently estimated the easiest readability, whereas FORCAST the most difficult. One hundred percent of CRS and 67% of skull base PROMs were above National Institutes of Health and health literacy experts' recommended reading levels. PROMs developed more recently had easier readability.

CONCLUSION

PROMs are important clinical tools in otolaryngology that help guide management of disease for improved patient-centered care. Like many other fields of medicine, those used in otolaryngology are beyond recommended reading levels. Development of PROMs in the future should meet recommended readability levels to fully assess the disease experience of our patients.

LEVEL OF EVIDENCE

4 Laryngoscope, 130:2305-2310, 2020.

摘要

目的

医疗保健中的结果衡量标准假设患者具有更高的健康水平和整体文化素养,这可能无法充分评估受教育程度较低的患者的疾病体验,从而使他们进一步处于不利地位。患者报告的结果测量(PROM)是临床实践中广泛使用的沟通工具,常用于评估和指导慢性鼻-鼻窦炎(CRS)和颅底疾病的管理。然而,尚未评估这些工具对于患者的可理解性和易读性。本研究旨在评估这些疾病常用 PROM 的易读性,以及它们是否符合推荐的易读性水平。

方法

使用 Gunning Fog、Simple Measure of Gobbledygook(SMOG)和 FORCAST 三种易读性指标评估常用于 CRS 和颅底疾病的 PROM。阅读水平达到六年级或以下的 PROM 被认为符合健康素养专家的建议。

结果

共评估了 11 种 PROM(8 种 CRS,3 种颅底疾病)。Gunning Fog 始终估计出最易读的阅读水平,而 FORCAST 则估计出最难的阅读水平。100%的 CRS 和 67%的颅底 PROM 的阅读水平超过了美国国立卫生研究院和健康素养专家推荐的阅读水平。最近开发的 PROM 具有更容易的易读性。

结论

PROM 是耳鼻喉科中重要的临床工具,有助于指导疾病管理,以实现以患者为中心的护理。像许多其他医学领域一样,耳鼻喉科中使用的 PROM 超出了推荐的阅读水平。未来开发 PROM 时应满足推荐的易读性水平,以充分评估患者的疾病体验。

证据等级

4 Laryngoscope, 130:2305-2310, 2020.

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