School of Nursing, Department of Nursing Care for Adult Patients, Campus Universitario, Universidad de Navarra, Pamplona, Spain.
IdiSNA, Navarra Institute for Health Research, Pamplona, Spain.
J Adv Nurs. 2020 Jan;76(1):275-286. doi: 10.1111/jan.14237. Epub 2019 Nov 4.
To explore the perception of normality in life experienced by patients with chronic heart failure.
A hermeneutic phenomenological study was conducted.
Individual conversational interviews were held with 20 outpatients with chronic heart failure between March 2014-July 2015. Van Manen's phenomenology of practice method was used for data analysis.
From the analysis, four main themes emerged: (a) Accepting my new situation; (b) Experiencing satisfaction with life; (c) Continuing with my family, social and work roles; and (d) Hiding my illness from others.
The present study makes a novel contribution to understanding the importance of the perception of normality in the lives of patients with chronic heart failure. It was found that patients need to incorporate this health experience into their lives and reach a 'new normal', thus achieving well-being. Several factors were identified that can help promote this perception in their lives; therefore, nursing interventions should be designed to help develop scenarios encouraging this normalization process.
Although the implications of having a sense of normality or experiencing 'normalization' of the illness process in life have been studied in other chronic patient populations, no studies to date have examined how patients with chronic heart failure experience this phenomenon in their lives. For the first time, the results of this research prove that the perception of normality is a key aspect in the experience of living with chronic heart failure.
探讨慢性心力衰竭患者的生活常态感知。
进行了一次解释学现象学研究。
2014 年 3 月至 2015 年 7 月，对 20 名慢性心力衰竭门诊患者进行了个体对话访谈。采用范马南实践现象学方法进行数据分析。
从分析中得出四个主要主题：（a）接受我的新情况；（b）体验生活的满足感；（c）继续履行家庭、社会和工作角色；（d）向他人隐瞒病情。
本研究对理解慢性心力衰竭患者生活常态感知的重要性做出了新的贡献。研究发现，患者需要将这种健康体验融入生活，并达到“新常态”，从而实现幸福。确定了几个可以帮助促进这种生活感知的因素；因此，护理干预措施的设计应有助于制定鼓励这种正常化过程的方案。
尽管在其他慢性患者群体中已经研究了具有常态感或经历疾病过程“正常化”在生活中的意义，但迄今为止尚无研究探讨慢性心力衰竭患者如何在生活中体验到这一现象。本研究首次证明，常态感是慢性心力衰竭患者生活体验的一个关键方面。
