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本文引用的文献

1
Racial/Ethnic Disparity in NICU Quality of Care Delivery.新生儿重症监护病房(NICU)护理质量的种族/族裔差异。
Pediatrics. 2017 Sep;140(3). doi: 10.1542/peds.2017-0918.
2
Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU.新生儿、儿科和成人 ICU 中的以家庭为中心的护理指南。
Crit Care Med. 2017 Jan;45(1):103-128. doi: 10.1097/CCM.0000000000002169.
3
Communication With Limited English-Proficient Families in the PICU.在儿科重症监护病房与英语水平有限的家庭沟通。
Hosp Pediatr. 2017 Jan;7(1):9-15. doi: 10.1542/hpeds.2016-0071. Epub 2016 Dec 15.
4
The use of family conferences in the pediatric intensive care unit.在儿科重症监护病房中使用家庭会议。
J Palliat Med. 2013 Dec;16(12):1595-601. doi: 10.1089/jpm.2013.0284. Epub 2013 Oct 31.
5
Effects of race, ethnicity, and gender on surgical mortality in hypoplastic left heart syndrome.种族、族裔和性别对左心发育不全综合征手术死亡率的影响。
Pediatr Cardiol. 2013;34(8):1829-36. doi: 10.1007/s00246-013-0723-3. Epub 2013 May 31.
6
Family-centered care in the pediatric intensive care unit.儿科重症监护病房的以家庭为中心的护理。
Pediatr Clin North Am. 2013 Jun;60(3):761-72. doi: 10.1016/j.pcl.2013.02.011. Epub 2013 Mar 7.
7
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care.儿科重症监护中床边家庭会议与会议室家庭会议的特点。
Pediatr Crit Care Med. 2013 Mar;14(3):e135-42. doi: 10.1097/PCC.0b013e318272048d.
8
Are family characteristics associated with attendance at family centered rounds in the PICU?家庭特征与儿科重症监护病房家庭为中心的查房参与度有关吗?
Pediatr Crit Care Med. 2013 Feb;14(2):e93-7. doi: 10.1097/PCC.0b013e31827129cc.
9
Predictors and correlates of dissatisfaction with intensive care.影响患者对重症监护治疗满意度的因素分析。
Crit Care Med. 2012 May;40(5):1554-61. doi: 10.1097/CCM.0b013e3182451c70.
10
Patient- and family-centered care and the pediatrician's role.以患者和家庭为中心的护理和儿科医生的角色。
Pediatrics. 2012 Feb;129(2):394-404. doi: 10.1542/peds.2011-3084. Epub 2012 Jan 30.

少数民族家庭在儿科重症监护中对沟通的偏好常常被忽视。

Racial Minority Families' Preferences for Communication in Pediatric Intensive Care Often Overlooked.

机构信息

Penn State Hershey Children's Hospital, Hershey, PA, USA.

Children's National Health System, Washington, DC, USA; The George Washington University School of Medicine and Health Sciences, Washington, DC, USA.

出版信息

J Natl Med Assoc. 2020 Feb;112(1):74-81. doi: 10.1016/j.jnma.2019.09.005. Epub 2019 Oct 22.

DOI:10.1016/j.jnma.2019.09.005
PMID:31653328
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7073286/
Abstract

OBJECTIVE

To compare the communication experiences and preferences of racial/ethnic minority and non-Hispanic white (NHW) families in the pediatric intensive care unit (PICU), including their interactions with bedside nurses.

METHODS

Retrospective cohort study performed at a quaternary university-affiliated children's hospital with 70 pediatric intensive care beds. From October 2013 to December 2014, English-speaking family members of children admitted to the PICU were asked about their experiences communicating with PICU caregivers using a survey tool.

RESULTS

107 participants were included for analysis, of which 60 self-identified as a racial minority and 47 as NHW. Overall, 11% of families chose family meetings as their preferred setting for receiving information, as compared to family-centered rounds or unplanned bedside meetings. Only 50% of those with a family meeting felt they learned new information during the meeting. Chi-square statistics or Fisher's exact tests showed that minority families were less likely to report their bedside nurses spent enough time speaking with them (minority 67%, NHW 85%; p = 0.03) and less likely to receive communication from the medical team in their preferred setting (minority 63%, NHW 85%; p = 0.01). Logistic regression, controlling for covariates including education, insurance, and risk of mortality, showed that the relationship between minority status and concordance of preferred setting persisted (OR = 0.32, 95% C·I.: 0.11, 0.91).

CONCLUSION

In general, families of PICU patients prefer meeting with the medical team during rounds or unplanned bedside meetings as opposed to formal family meetings. Despite this preference, minority families are less likely to receive communication from the medical team in their preferred settings. Meeting all families' communication setting needs may improve their communication experiences in the PICU.

摘要

目的

比较儿科重症监护病房(PICU)中少数民族和非西班牙裔白人(NHW)家庭的沟通体验和偏好,包括他们与床边护士的互动。

方法

这是一项在拥有 70 张儿科重症监护病床的四级大学附属儿童医院进行的回顾性队列研究。2013 年 10 月至 2014 年 12 月,向 PICU 收治的儿童的英语家庭,使用调查工具询问他们与 PICU 护理人员沟通的经历。

结果

纳入分析的 107 名参与者中,60 名自我认定为少数民族,47 名自我认定为 NHW。总体而言,11%的家庭选择家庭会议作为他们接受信息的首选场所,而不是以家庭为中心的查房或计划外的床边会议。只有 50%参加家庭会议的人表示他们在会议期间了解了新信息。卡方检验或 Fisher 确切检验显示,少数民族家庭认为他们的床边护士与他们交谈的时间不够(少数民族 67%,NHW 85%;p=0.03),也不太可能在他们首选的场所收到医疗团队的沟通(少数民族 63%,NHW 85%;p=0.01)。控制教育、保险和死亡率风险等协变量的逻辑回归显示,少数民族身份与首选场所一致的关系仍然存在(OR=0.32,95%置信区间:0.11,0.91)。

结论

一般来说,PICU 患者的家属更希望在查房或计划外的床边会议期间与医疗团队会面,而不是正式的家庭会议。尽管有这种偏好,少数民族家庭仍不太可能在他们首选的场所收到医疗团队的沟通。满足所有家庭的沟通场所需求,可能会改善他们在 PICU 的沟通体验。