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阿尔茨海默病护理者互助小组:在不确定的时代创造属于我们自己的空间。

Support groups for Alzheimer's caregivers: Creating our own space in uncertain times.

作者信息

Simpson Gaynell M, Stansbury Kim, Wilks Scott E, Pressley Tracy, Parker Michael, McDougall Graham J

机构信息

School of Social Work, The University of Alabama, Tuscaloosa, Alabama, USA.

Department of Social Work, North Carolina State University, Raleigh, North Carolina, USA.

出版信息

Soc Work Ment Health. 2018;16(3):303-320. doi: 10.1080/15332985.2017.1395780. Epub 2017 Nov 30.

Abstract

Older men are often excluded from family caregiving research despite the steady increase in the number of husbands assuming primary caregiving roles. We explored perceptions of older, male caregivers' experiences with caring for a wife with Alzheimer's Disease (AD) and examined what aspects of the support group were beneficial. Our qualitative research methods invited six caregivers ranging in age from 74 to 85 years to narratively construct their perspectives on caring for their wives with Alzheimer's Disease and benefits of participation in an all-male support group. Thematic analyses revealed care-givers faced several transitions. "Losses related to their personal relationships with their wife, family, and self," captured as loss of golden years. The second area, benefits and improvements of support groups, were captured in the following theme: "creating our own space," which included two sub-themes: "releasing our frustration" and "developing coping strategies." There was also "Gendered experience of caregiving." This study revealed that male caregivers benefited from the support and company of other men in similar caregiving situations. Results from this study have implications for health care professionals for the development of psychosocial educational groups aimed at providing support to male caregivers.

摘要

尽管承担主要照料角色的丈夫数量在稳步增加,但老年男性往往被排除在家庭照料研究之外。我们探讨了老年男性照料者对照顾患阿尔茨海默病(AD)妻子经历的看法,并研究了支持小组的哪些方面是有益的。我们的定性研究方法邀请了六位年龄在74岁至85岁之间的照料者,让他们叙述自己对照顾患阿尔茨海默病妻子的看法以及参与全男性支持小组的益处。主题分析显示,照料者面临着几个转变。“与他们与妻子、家庭和自我的个人关系相关的损失”,被描述为失去了黄金岁月。第二个方面,支持小组的益处和改善,体现在以下主题中:“创造我们自己的空间”,其中包括两个子主题:“释放我们的沮丧”和“制定应对策略”。此外还有“照料的性别化经历”。这项研究表明,男性照料者从处于类似照料情况的其他男性的支持和陪伴中受益。这项研究的结果对医疗保健专业人员开发旨在为男性照料者提供支持的心理社会教育小组具有启示意义。

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本文引用的文献

1
2016 Alzheimer's disease facts and figures.2016 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2016 Apr;12(4):459-509. doi: 10.1016/j.jalz.2016.03.001.
6
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