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1型糖尿病幼儿家庭基于网络干预措施的迭代开发:DIPPer学院

Iterative development of a web-based intervention for families of young children with type 1 diabetes: DIPPer Academy.

作者信息

Marker Arwen M, Monzon Alexandra D, Goggin Kathy J, Clements Mark A, Patton Susana R

机构信息

University of Kansas.

Children's Mercy Hospital.

出版信息

Clin Pract Pediatr Psychol. 2019 Mar;7(1):20-30. doi: 10.1037/cpp0000263.

Abstract

OBJECTIVE

A new diagnosis of Type 1 diabetes mellitus (T1D) can be stressful for families as they are expected to learn a large amount of information regarding disease management and treatment in a short period of time. Currently, parents complete diabetes education at the time of diagnosis. However, this format may not be sustainable as rates of T1D climb. The current study aimed to develop an online platform to provide educational material in the form of video micro-lectures using an iterative, user-centered, design process.

METHODS

In the first stage of development, parents of young children with T1D identified information they felt most important to their child's T1D care. In the second stage, healthcare providers contributed qualitative and quantitative feedback regarding the educational material and video mock-ups. The third stage involved parents of young children with T1D providing feedback on the completed video micro-lectures.

RESULTS

Providers and parents reported that the videos were highly useful, important to T1D care, and the majority would recommend them to other parents.

CONCLUSIONS

The iterative design process used by the research team incorporated multiple perspectives and ultimately developed educational resources that were well-received by providers, researchers, and parents.

IMPLICATIONS FOR IMPACT STATEMENT

This study used an iterative, user-centered design to develop a series of web-based videos for parents of young children with type 1 diabetes. Primary stakeholders, both healthcare providers and parents, described videos as highly important, useful, enjoyable, and would recommend these resources to others. Parents rated videos highly across a variety of presentations that ranged in development time and cost, indicating that researchers can feasibly and cost-effectively create web-based resources for parents.

摘要

目的

1型糖尿病(T1D)的新诊断可能会给家庭带来压力,因为他们需要在短时间内了解大量有关疾病管理和治疗的信息。目前,父母在诊断时完成糖尿病教育。然而,随着T1D发病率的攀升,这种形式可能无法持续。本研究旨在开发一个在线平台,以视频微讲座的形式提供教育材料,采用迭代的、以用户为中心的设计过程。

方法

在开发的第一阶段,患有T1D的幼儿的父母确定了他们认为对孩子的T1D护理最重要的信息。在第二阶段,医疗保健提供者对教育材料和视频样片提供了定性和定量反馈。第三阶段让患有T1D的幼儿的父母对完成的视频微讲座提供反馈。

结果

提供者和父母报告说,这些视频非常有用,对T1D护理很重要,大多数人会向其他父母推荐。

结论

研究团队采用的迭代设计过程纳入了多个视角,最终开发出了受到提供者、研究人员和父母好评的教育资源。

影响声明的意义

本研究采用迭代的、以用户为中心的设计为患有1型糖尿病的幼儿的父母开发了一系列基于网络的视频。主要利益相关者,包括医疗保健提供者和父母,都将这些视频描述为非常重要、有用、有趣,并会向他人推荐这些资源。父母对各种制作时间和成本不同的视频评价都很高,这表明研究人员可以切实可行且经济高效地为父母创建基于网络的资源。

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