Case Western Reserve University School of Medicine, Cleveland, Ohio, USA.
Case Western Reserve University School of Medicine, University Hospitals Cleveland Medical Center, Cleveland, Ohio, USA.
Epilepsy Behav. 2019 Dec;101(Pt A):106469. doi: 10.1016/j.yebeh.2019.106469. Epub 2019 Oct 31.
People with epilepsy (PWE) may experience negative health events (NHEs) such as seizures, emergency room visits, and hospitalizations, with ethnic and racial minorities disproportionately affected. Epilepsy self-management may reduce NHEs; however, few reports examine self-management outcomes in racial minorities. Using data from a longitudinal 6-month randomized controlled trial (RCT) of 120 PWE, this analysis compared African-American and Whites at baseline, 10 weeks and 24 weeks after receiving the "Self-management for people with epilepsy (SMART) and a history of NHEs" self-management program. The primary RCT outcome was number of NHEs. At baseline, compared to Whites, African-Americans had less education (p = 0.02) and greater depressive severity (p = 0.04). Both African-American and Whites generally improved with SMART, and there were no racial differences in NHE counts or other outcomes' responses. Given known racial disparities in epilepsy care, it may be particularly important to reach out to minority PWE with self-management programs.
癫痫患者（PWE）可能会经历负面健康事件（NHEs），例如癫痫发作、急诊就诊和住院治疗，少数民族受到的影响不成比例。癫痫自我管理可能会减少 NHEs；然而，很少有报告研究少数民族的自我管理结果。本研究使用了一项为期 6 个月的纵向随机对照试验（RCT）的数据，该试验纳入了 120 名 PWE，比较了基线、接受“有 NHEs 史的癫痫患者自我管理（SMART）”自我管理计划后 10 周和 24 周时的非裔美国人和白人。主要的 RCT 结果是 NHE 数量。基线时，与白人相比，非裔美国人受教育程度较低（p=0.02），抑郁严重程度更高（p=0.04）。SMART 对非裔美国人和白人都有改善作用，NHE 计数或其他结果的反应没有种族差异。鉴于癫痫护理方面存在已知的种族差异，对于少数民族 PWE 来说，提供自我管理计划可能尤为重要。
